Presentations

Poster Presentations

Same-page care is associated with improved shared decision-making for patients with inflammatory bowel disease

  • Author: Van Citters AD, Holthoff MM, Kennedy AM, Hoggard AL, Oliver BJ, Weaver A, Siegel CA, Melmed GY, Nelson EC
  • Conference: Digestive Disease Week. Chicago, IL. May 2020. (virtual conference presentation)

Measuring value: Identifying a balanced measure set for quality improvement focused on improving care for inflammatory bowel disease

  • Author: Kennedy AM, van Deen W, Oliver BJ, Nelson EC, Van Citters A, Holthoff MM, Weaver A, Siegel CA, Melmed GY and the IBD Qorus Value Delhi Group.
  • Conference: Digestive Disease Week. Chicago, IL. May 2020. (virtual conference presentation)

Top Goals and Concerns Reported by Individuals with Inflammatory Bowel Disease at Outpatient Gastroenterology Clinic Visits

  • Authors: Tse CS, Shah S, Crate D, Oberai R, Hwang C, Ostrov A, Lum D, Nelson E, Oliver B, Van Citters A, Holthoff M, Kennedy A, Hou J, Singh S, Weaver A, Melmed G, Siegel C, Van Deen W
  • Conference: 2020 Crohn’s & Colitis Congress. Austin, TX. January 2020

Measuring value: Identifying a balanced measure set for the IBD Qorus improvement collaborative

  • Authors: Kennedy A, van Deen W, Oliver, B, Nelson E, Weaver A, Siegel C, Melmed G, IBD Qorus Delphi Group
  • Conference: Institute for Healthcare Improvement Annual Forum. Orlando, FL. December 2019.

The Multiple Sclerosis Continuous Improvement Collaborative (MS-CQI): Interim results of the 3-year prospective multicenter step-wedge randomized study

  • Author: Oliver B
  • Conference: Institute for Healthcare Improvement Annual Forum. Orlando, FL. December 2019.
  • Abstract Publication: BMJ Open; 8(2): (Suppl 2) A11-A14; doi: 10.1136/bmjoq-2019-ihi.7.

Using a co-design approach to support and enhance long-term adoption and engagement in IBD Qorus

  • Authors: Morgan E, Van Citters A, Holthoff M, Abrams M, Arsuaga A, Bray H, Caron J, Gerner D, Hudesman D, Israel A, Keith E, Kearney K, Lum D, Ostrov A, Sakuraba A, Sharp D, Turner Q, Williams J, Zouroudis J, Kennedy A, Oberai R, Weaver A
  • Conference: Institute for Healthcare Improvement Annual Forum. Orlando, FL. December 2019.

Formative Evaluation of a Dashboard to Support Coproduction of Healthcare Services in the Cystic Fibrosis Community

  • Authors: Van Citters A, Sabadosa K, Gifford A, Nelson E
  • Conference: Institute for Healthcare Improvement Annual Forum. Orlando, FL. December 2019.

Coproducing care with RA and Gout patients at the Dallas VA rheumatology clinic

  • Authors: Johnson L, Reddy S, Arora R, Shwin K, Chao Y, Van Citters A, Ahmad J, Eakin G, Nelson E, Kazi S
  • Conference: Institute for Healthcare Improvement Annual Forum. Orlando, FL. December 2019.

Learning health systems can link people, information, and knowledge to create better health

  • Authors: Van Citters A, Johnson L, Holthoff M, Oliver B, Sabadosa K, Morgan E, O’Donnell B, Kennedy A, King J, Hoggard A, Ahmad J, Bowling J, Batalden P, Nelson E
  • Conference: Institute for Healthcare Improvement Annual Forum. Orlando, FL. December 2019.  

A cystic fibrosis registry-enabled learning health system co-production dashboard

  • Authors: Sabadosa K, Gifford AH, Van Citters A, Nelson E.  
  • Conference: 42nd European Cystic Fibrosis Conference. Liverpool, UK. June, 2019. 

Coproduction of visit notes in the electronic health record using OurNotes – one institution’s implementation

  • Authors: Liu S, Herndon MB, Bettag C, Nelson E, Sabadosa K, Walker J, Delbanco T.  
  • Conference: Society of General Internal Medicine Annual Meeting. Washington, DC. May, 2019. 

Partnering with patients and families to coproduce better care and outcomes

  • Authors: Lee T, Taxter A, Tabussi D, Danielson J, Shelton R, Shelton S, Kuncken C, Del Gaizo V, Johnson L, Schrandt S, Kimura Y. 
  • Conference: Childhood Arthritis and Rheumatology Research Alliance Annual Meeting. Louisville, KY. April, 2019.

Leveraging a novel documentation paradigm to populate the CF Foundation Patient Registry

  • Authors: Leander D, Gifford A, Homa K, Van Citters AD, Snide J, Nelson E, Sabadosa K.
  • Conference: North American Cystic Fibrosis Conference. Indianapolis, IN. November, 2017.

Streamlining data transfer between the Epic platform and the CF Foundation Patient Registry

  • Authors: Leander D, Gifford A, Homa K, Van Citters A, Nelson E, Sabadosa K.
  • Conference: Coproduction Conference. Cincinnati, OH. May, 2017.

Co-producing chronic care: A multi-stakeholder focus group study to define key principles

  • Authors: Homa K, Sabadosa K, Nelson E
  • Conference: Coproduction Conference. Cincinnati, OH. May, 2017.

Coproducing CF Care: Rapid Tests of Change

  • Authors: Savant AP, Laguna TA, Dunitz JM, Prickett M, Brady C, Van Citters A, Sabadosa K, Marshall B, Nelson E.
  • Conference: North American Cystic Fibrosis Conference. Orlando, Florida. November, 2016.

Oral Presentations

Improving health, healthcare value and outcomes science: A workshop on starting a Coproduction Learning Health System

  • Presenters: Van Citters A, Oliver B, Nelson G.
  • Conference: International Society for Quality (ISQua) Annual Meeting, Cape Town, South Africa. October, 2019.

Shared decision-making independently associated with patient confidence in self-care for adults with inflammatory bowel disease

  • Presenters: Van Citters A, Holthoff M, Siegel C, Melmed G, Kennedy A, Barr P, Oliver B, Morgan E, Weaver A, Nelson G, Elwyn G.
  • Conference: International Shared Decision Making Conference. Quebec City, Canada. July, 2019.

Partnering: The oldest new idea to improve CF care

  • Presenters: Batalden M, Sabadosa K, Abdelnour M, George C.
  • Conference: North American CF Conference (Plenary Session). Denver, CO. October, 2018.

Organic development of a co-production system for promoting wellness in chronic illness: The MSF peer outreach wellness program for people with multiple sclerosis

  • Presenters: Oliver BJ, Hall A, Norton B, Moriarty A, Kotz C
  • Conference: Microsystem Festival. Jönköping, Sweden. February, 2018.

Design, testing, and use of patient reported outcomes to improve CF care

  • Presenter: Moore B.
  • Conference: North American CF Conference, Nursing Discipline Group: Electronic Medical Record: Tips & Tricks. Indianapolis, IN. November 4, 2017.

CF Health Check, Designed with people with CF, families, and care teams to improve the way we work together to manage CF care

  • Presenter: Sabadosa K.
  • Conference: North American CF Conference, Nutrition Discipline Group: Partnerships in Care & Nutrition Education: Thinking Outside the Box. Indianapolis, IN. November 3, 2017.

Learning Health Systems for Coproducing Health, Improvement and Science with Patients, Clinicians & Researchers: Working at the Frontiers of Improvement Science

  • Presenter: Nelson EC.
  • Conference: 2017 International Improvement Science and Research Symposium. London ExCel. April 26, 2017.

“Shark Tank” Presentation: Streamlining data transfer between the Epic platform and the CF Foundation Patient Registry

  • Presenters: Leander D, Gifford A, Homa K, Van Citters A, Nelson E, Sabadosa K.
  • Conference: Coproduction Conference. Cincinnati, OH. May, 2017.

Using a Sidecar Strategy to Integrate PROs with EHRs: CF Health Check

  • Presenters: Nelson EC; Van Citters AD.
  • Conference: PCORI, User’s Guide for Patient-Reported Outcomes in the Electronic Health Record. Arlington, VA. May 26, 2017

Developing a coproduction dashboard using human-centered design

  • Presenters: Prickett M, Laguna TA, Savant AP, Dunitz JM, Brady C, Dowd CG, Van Citters AD, Sabadosa K, Marshall B, Nelson EC.
  • Conference: North American Cystic Fibrosis Conference. Orlando, Florida. October, 2016.

Person-Centered Care and Patient Reported Outcomes: Why, What and How

  • Presenter: Nelson EC.
  • Conference: ISQua Annual Meeting. Workshop: Using PROMs to Promote Patient-centered Care 101. Tokyo, Japan. October 16, 2016.

Learning Through Coproduction: A Model for Improving Health Outcomes, Healthcare Services and Research

  • Presenter: Nelson EC.
  • Conference: CoHIS QI Connect 2016. Global WebEx Series. July 27, 2016.

Patient Reported Outcomes to Improve Quality of Care

  • Presenter: Sabadosa, K.
  • Conference: European Cystic Fibrosis Society Conference, S06: Use of registries for quality improvement. Basel, Switzerland. June 9, 2016.