Healthcare coproduction engages patients and clinicians to design and execute services, yet little is known about tools that facilitate coproduction. This evaluation aimed to understand uptake, experiences, benefits, and limitations of a dashboard to support patient-clinician partnerships within the cystic fibrosis (CF) community.
Dashboards are increasingly used to provide consolidated, real-time displays of patient- and clinician- generated information including well-being, needs, goals, and interventions. The impact of using dashboards to improve knowledge, health, and care delivery has been demonstrated in various disease states and in different geographic locations.
We worked with eight CF programs, including 21 clinicians, and 131 people with CF (PwCF) to pilot test a co-designed dashboard that displayed patient-reported and clinical data. Surveys, semi-structured interviews, and passively-collected usage data informed the evaluation.
Several themes emerged: (1) access to patient outcomes data allows users to learn more deeply; (2) participation in pre-visit planning matters; (3) coproduction is made possible by inviting new ways to partner; and (4) lack of integration with existing information technology (IT) is limiting. These results suggest that the utilization of coproduction dashboards is beneficial for informing clinic visit agendas but IT limitations impacted usability. Future iterations should provide patients with access to their data, be simple to use, and integrate with IT systems in use by care teams and people living with cystic fibrosis.
Read more here: https://www.cysticfibrosisjournal.com/article/S1569-1993(20)30080-1/fulltext