Publications

Review literature about learning health systems, coproduction, and other related research published by our team. 

Van Citters, A.D., Gifford, A.H., Brady, C., Dunitz, J.M., Elmhirst, M., Flath, J., Laguna, T. A., Moore, B., Prickett, M. L., Riordan, M., Savant, A. P., Gore, W., Jian, S., Soper, M., Marshall, B. C., Nelson, E. C., Sabadosa, K. A. (2020). Formative evaluation of a dashboard to support coproduction of healthcare services in cystic fibrosis. J Cyst Fibros. https://doi.org/10.1016/j.jcf.2020.03.009

Dixon-Woods, M., Campbell, A., Chang, T., Martin, G., Georgiadis, A., Heney, V., Chew, S., Van Citters, A., Sabadosa, K. A., Nelson, E. C. (2020). A qualitative study of design stakeholders’ views of developing and implementing a registry-based learning health system. Implement Sci. 15(1):16. https://doi.org/10.1186/s13012-020-0976-1

 Elwyn, G., Nelson, E., Hager, A. & Price, A. (2019). Coproduction: when users define quality. BMJ Qual Saf, 

Oliver, B. J., Nelson, E. C. & Kerrigan C. L. (2019). Turning feed-forward and feedback processes on patient-reported data into intelligent action and informed decision-making: Case studies and principles. Medical Care, 57(5), S31-S37. doi:10.1097/MLR.0000000000001088

 

Leander, D. M., Gifford, A. H., Mecchella, J. N., Sabadosa, K. A., Van Citters, A., Snide, J. A., & Nelson E. C. (2019). Design and implementation of a novel electronic health record tool to enhance the care of individuals with cystic fibrosis: The cystic fibrosis note template. ACI Open, 3(1), e26-e36. doi:10.1055/s-0039-1688804

Batalden, P. (2018). Getting more health from healthcare: quality improvement must acknowledge patient coproduction—an essay by Paul Batalden. Bmj, 362, k3617. doi:10.1136/bmj.k3617

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Kamal, A. H., Kirkland, K. B., Meier, D. E., Morgan, T. S., Nelson, E. C., & Pantilat, S. Z. (2018). A person-centered, registry-based learning health system for palliative care: A path to coproducing better outcomes, experience, value, and science. Journal of Palliative Medicine, 21(S2), S61-S67. doi:10.1089/jpm.2017.0354

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Homa, K., Sabadosa, K., Titus, K. E., Van Citters, A. D., Morgan, T. S., Morgan, E., Mertz, P., Laguna, T., Savant, A., Brady, C., Batalden, M., Batalden, P., & Nelson, E. C. (2017) Coproducing chronic care: A multi-stakeholder focus group study. Technical Report sponsored by the Dartmouth Institute for Health Policy & Clinical Practice and the Robert Wood Johnson Foundation. 

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Johnson, L. C., Melmed, G. Y., Nelson, E. C., Holthoff, M. M., Weaver, S. A., Morgan, T. S., & Siegel, C. A. (2017). Fostering Collaboration Through Creation of an IBD Learning Health System. Am J Gastroenterol, 112(3), 406-408. doi:10.1038/ajg.2017.9

Ovretveit, J., Zubkoff, L., Nelson, E. C., Frampton, S., Knudsen, J. L., & Zimlichman, E. (2017). Using patient-reported outcome measurement to improve patient care. Int J Qual Health Care, 29(6), 874-879. doi:10.1093/intqhc/mzx108

Nelson, E. C., Dixon-Woods, M., Batalden, P. B., Homa, K., Van Citters, A. D., Morgan, T. S., Eftimovska, E., Fisher, E. S., Ovretveit, J., Harrison, W., & Lindblad, S. (2016). Patient focused registries can improve health, care, and science. Bmj, 354, i3319. doi:10.1136/bmj.i3319

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Ovretveit, J., Nelson, E., & James, B. (2016). Building a learning health system using clinical registers: a non-technical introduction. J Health Organ Manag, 30(7), 1105-1118. doi:10.1108/JHOM-06-2016-0110

Lindblad, S., Ernestam, S., Van Citters, A. D., Lind, C., Morgan, T. S., & Nelson, E. C. (2017). Creating a culture of health: Evolving healthcare systems and patient engagement. QJM, 110(3), 125-129. doi: 10.2105/AJPH.2014.302410

Batalden, M., Batalden, P., Margolis, P., Seid, M., Armstrong, G., Opipari-Arrigan, L., & Hartung, H. (2016). Coproduction of healthcare service. BMJ Qual Saf, 25(7), 509-517. doi:10.1136/bmjqs-2015-004315

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Nelson, E. C., Eftimovska, E., Lind, C., Hager, A., Wasson, J. H., & Lindblad, S. (2015). Patient reported outcome measures in practice. Bmj, 350, g7818. doi:10.1136/bmj.g7818

Sabadosa, K. A., & Batalden, P. B. (2014). The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement. BMJ Qual Saf, 23 Suppl 1, i90-94. doi:10.1136/bmjqs-2013-002782