Publications

Review literature about learning health systems, coproduction, and other related research published by our team. 

Updated on December 19, 2023

Estimates of loneliness among racially and ethnically diverse adults with serious mental illness in New York City boroughs: Manhattan, Bronx, and Brooklyn.
Fortuna KL, Rhee TG, Leininger LJ, Ferron J, Elwyn G, Raue PJ, Heller R, Werlin J
J Am Geriatr Soc. 2023 Dec 1; doi: 10.1111/jgs.18688. Epub 2023 Dec 1.
PMID: 38038487

Evaluating the effect of Conversation Cards on agenda-setting in annual diabetes status visits: A multi-method study.
Munch L, Stensgaard S, Feinberg MB, Elwyn G, Lomborg K
Patient Educ Couns. 2023 Nov 25;119:108084. doi: 10.1016/j.pec.2023.108084. Epub 2023 Nov 25.
PMID: 38029577

The Costs of Implementing a Conversation Aid for Uterine Fibroids in Multiple Health Care Settings.
Acquilano SC, Forcino RC, Schubbe D, Engel J, Tomaino M, Johnson LC, Durand MA, Elwyn G
Med Care. 2023 Oct 1;61(10):689-698. doi: 10.1097/MLR.0000000000001897. Epub 2023 Sep 7.
PMID: 37943524

The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact.
Van Citters AD, Buus-Frank ME, King JR, Seid M, Holthoff MM, Amin RS, Britto MT, Nelson EC, Marshall BC, Sabadosa KA
Learn Health Syst. 2023 Jul;7(3):e10356. doi: 10.1002/lrh2.10356. Epub 2022 Dec 20.
PMID: 37731865

Implementing shared decision making for early-stage breast cancer treatment using a coproduction learning collaborative: the SHAIR Collaborative protocol.
Schubbe D, Yen RW, Leavitt H, Forcino RC, Jacobs C, Friedman EB, McEvoy M, Rosenkranz KM, Rojas KE, Bradley A, Crayton E, Jackson S, Mitchell M, O’Malley AJ, Politi M, Tosteson ANA, Wong SL, Margenthaler J, Durand MA, Elwyn G
Implement Sci Commun. 2023 Jul 14;4(1):79. doi: 10.1186/s43058-023-00453-z. Epub 2023 Jul 14.
PMID: 37452387

The impact of adding cost information to a conversation aid to support shared decision making about low-risk prostate cancer treatment: Results of a stepped-wedge cluster randomised trial.
Politi MC, Forcino RC, Parrish K, Durand MA, O’Malley AJ, Moses R, Cooksey K, Elwyn G
Health Expect. 2023 Oct;26(5):2023-2039. doi: 10.1111/hex.13810. Epub 2023 Jul 2.
PMID: 37394739

Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis.
Saunders CH, Sierpe A, von Plessen C, Kennedy AM, Leviton LC, Bernstein SL, Goldwag J, King JR, Marx CM, Pogue JA, Saunders RK, Van Citters A, Yen RW, Elwyn G, Leyenaar JK, Coproduction Laboratory
BMJ. 2023 Jun 8;381:e074256. doi: 10.1136/bmj-2022-074256. Epub 2023 Jun 8.
PMID: 37290778

Do payment programs incentivize shared decision making in US healthcare?
Elwyn G, Sierpe A, Forcino R
Patient Educ Couns. 2023 Aug;113:107798. doi: 10.1016/j.pec.2023.107798. Epub 2023 May 18.
PMID: 37224594

“Less is more”: A design thinking approach to the development of the agenda-setting conversation cards for people with type 2 diabetes.
Lomborg K, Munch L, Kroner FH, Elwyn G
PEC Innov. 2022 Dec;1:100097. doi: 10.1016/j.pecinn.2022.100097. Epub 2022 Nov 10.
PMID: 37213776

Decision making in metoidioplasty and phalloplasty gender-affirming surgery: a mixed methods study.
Butcher RL, Kinney LM, Blasdel GP, Elwyn G, Myers JB, Boh B, Luck KM, Moses RA
J Sex Med. 2023 Jun 28;20(7):1032-1043. doi: 10.1093/jsxmed/qdad063.
PMID: 37173118

Excess Mortality Among Patients in the Veterans Affairs Health System Compared With the Overall US Population During the First Year of the COVID-19 Pandemic.
Weinberger DM, Rose L, Rentsch C, Asch SM, Columbo JA, King J Jr, Korves C, Lucas BP, Taub C, Young-Xu Y, Vashi A, Davies L, Justice AC
JAMA Netw Open. 2023 May 1;6(5):e2312140. doi: 10.1001/jamanetworkopen.2023.12140. Epub 2023 May 1.
PMID: 37155169

“It helps us say what’s important…” Developing Serious Illness Topics: A clinical visit agenda-setting tool.
Saunders CH, Durand MA, Scalia P, Kirkland KB, MacMartin MA, Barnato AE, Milne DW, Collison J, Bennett A, Wasp G, Nelson E, Elwyn G
Patient Educ Couns. 2023 Aug;113:107764. doi: 10.1016/j.pec.2023.107764. Epub 2023 Apr 18.
PMID: 37150152

Multi-cancer Early Detection Tests, Primary Care, and Shared Decision Making.
Selby K, Elwyn G, Volk RJ
Ann Intern Med. 2023 May;176(5):718-720. doi: 10.7326/M23-0067. Epub 2023 Apr 11.
PMID: 37037037

Utilization Patterns and Outcomes of People With Diabetes and COVID-19: Evidence From United States Medicare Beneficiaries in 2020.
Austin AM, Leggett CG, Schmidt P, Bolin P, Nelson EC, Oliver BJ, King AC
Front Clin Diabetes Healthc. 2022;3:920478. doi: 10.3389/fcdhc.2022.920478. Epub 2022 Jul 5.
PMID: 36992748

Epistemic justice is the basis of shared decision making.
Galasiński D, Ziołkowska J, Elwyn G
Patient Educ Couns. 2023 Jun;111:107681. doi: 10.1016/j.pec.2023.107681. Epub 2023 Feb 24.
PMID: 36871402

Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians.
Van Citters AD, Taxter AJ, Mathew SD, Lawson E, Eseddi J, Del Gaizo V, Ahmad J, Bajaj P, Courtnay S, Davila L, Donaldson B, Kimura Y, Lee T, Mecchella JN, Nelson EC, Pompa S, Tabussi D, Johnson LC
ACR Open Rheumatol. 2023 Apr;5(4):190-200. doi: 10.1002/acr2.11533. Epub 2023 Feb 27.
PMID: 36852527

The CONFIDENT study protocol: a randomized controlled trial comparing two methods to increase long-term care worker confidence in the COVID-19 vaccines.
Stevens G, Johnson LC, Saunders CH, Schmidt P, Sierpe A, Thomeer RP, Little NR, Cantrell M, Yen RW, Pogue JA, Holahan T, Schubbe DC, Forcino RC, Fillbrook B, Sheppard R, Wooten C, Goldmann D, O’Malley AJ, Dube E, Durand MA, Elwyn G
BMC Public Health. 2023 Feb 23;23(1):384. doi: 10.1186/s12889-023-15266-x. Epub 2023 Feb 23.
PMID: 36823559

Harnessing the Collective Expertise of Patients, Care Partners, Clinical Teams, and Researchers Through a Coproduction Learning Health System: A Case Study of the Dartmouth Health Promise Partnership.
Tosteson ANA, Kirkland KB, Holthoff MM, Van Citters AD, Brooks GA, Cullinan AM, Dowling-Schmitt MC, Holmes AB, Meehan KR, Oliver BJ, Wasp GT, Wilson MM, Nelson EC
J Ambul Care Manage. 2023 Apr-Jun 01;46(2):127-138. doi: 10.1097/JAC.0000000000000460.
PMID: 36820633

Discussing Cost and Value in Patient Decision Aids and Shared Decision Making: A Call to Action.
Politi MC, Housten AJ, Forcino RC, Jansen J, Elwyn G
MDM Policy Pract. 2023 Jan-Jun;8(1):23814683221148651. doi: 10.1177/23814683221148651. Epub 2023 Jan 10.
PMID: 36643615

Urethral outcomes in metoidioplasty and phalloplasty gender affirming surgery (MaPGAS) and vaginectomy: a systematic review.
Ortengren CD, Blasdel G, Damiano EA, Scalia PD, Morgan TS, Bagley P, Blunt HB, Elwyn G, Nigriny JF, Myers JB, Chen ML, Moses RA
Transl Androl Urol. 2022 Dec;11(12):1762-1770. doi: 10.21037/tau-22-174.
PMID: 36632157

Shared decision making and its relevance to thoracic surgery.
Elwyn G, Brunelli A
J Thorac Cardiovasc Surg. 2023 Jun;165(6):1967-1970. doi: 10.1016/j.jtcvs.2022.12.001. Epub 2022 Dec 8.
PMID: 36572590

The limits of shared decision making.
Elwyn G, Price A, Franco JVA, Gulbrandsen P
BMJ Evid Based Med. 2023 Aug;28(4):218-221. doi: 10.1136/bmjebm-2022-112089. Epub 2022 Dec 15.
PMID: 36522136

Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advanced Cancer and Chronic Kidney Disease.
Perry LM, Morken V, Peipert JD, Yanez B, Garcia SF, Barnard C, Hirschhorn LR, Linder JA, Jordan N, Ackermann RT, Harris A, Kircher S, Mohindra N, Aggarwal V, Frazier R, Coughlin A, Bedjeti K, Weitzel M, Nelson EC, Elwyn G, Van Citters AD, O’Connor M, Cella D
JMIR Res Protoc. 2022 Sep 21;11(9):e38461. doi: 10.2196/38461. Epub 2022 Sep 21.
PMID: 36129747

Using incorpoRATE to examine clinician willingness to engage in shared decision making: A study of Family Medicine residents.
Grad R, Sandhu A, Ferrante M, D’Souza V, Puterman-Salzman L, Abbasgholizadeh Rahimi S, Stevens G, Elwyn G
Patient Educ Couns. 2022 Dec;105(12):3529-3533. doi: 10.1016/j.pec.2022.08.012. Epub 2022 Aug 23.
PMID: 36088190

A Rectal Cancer Surgical Decision Aid Is Not Enough: A Qualitative Study.
Goldwag JL, Saunders CH, Read JT, Durand MA, Elwyn G, Ivatury SJ
Dis Colon Rectum. 2022 Dec 1;65(12):1483-1493. doi: 10.1097/DCR.0000000000002444. Epub 2022 Aug 22.
PMID: 36037408

Eliciting patients’ healthcare goals and concerns: Do questions influence responses?
Scalia P, van Deen WK, Engel JA, Stevens G, Van Citters AD, Holthoff MM, Johnson LC, Kennedy AM, Reddy SB, Nelson EC, Elwyn G
Chronic Illn. 2022 Sep;18(3):708-716. doi: 10.1177/17423953211067417. Epub 2022 Jan 4.
PMID: 35993673

Co-Development of a Web Application (COVID-19 Social Site) for Long-Term Care Workers (“Something for Us”): User-Centered Design and Participatory Research Study.
Saunders CH, Sierpe A, Stevens G, Elwyn G, Cantrell M, Engel J, Gonzalez M, Hayward M, Huebner J, Johnson L, Jimenez A, Little NR, McKenna C, Onteeru M, Oo Khine M, Pogue J, Salinas Vargas JL, Schmidt P, Thomeer R, CONFIDENT Study Long-Term Care Partners, Durand MA
J Med Internet Res. 2022 Sep 22;24(9):e38359. doi: 10.2196/38359. Epub 2022 Sep 22.
PMID: 35926074

Interdisciplinary Approach and Patient/Family Partners to Improve Serious Illness Conversations in Outpatient Oncology.
Wasp GT, Cullinan AM, Anton CP, Williams A, Perry JJ, Holthoff MM, Buus-Frank ME
JCO Oncol Pract. 2022 Oct;18(10):e1567-e1573. doi: 10.1200/OP.22.00086. Epub 2022 Jul 20.
PMID: 35858156

Prioritizing Measures That Matter Within a Person-Centered Oncology Learning Health System.
Van Citters AD, Kennedy AM, Kirkland KB, Dragnev KH, Leach SD, Buus-Frank ME, Malcolm EF, Holthoff MM, Holmes AB, Nelson EC, Reeves SA, Tosteson ANA, Promise Partnership Delphi Panel
JNCI Cancer Spectr. 2022 May 2;6(3) doi: 10.1093/jncics/pkac037.
PMID: 35736219

Editorial: 20 years after the start of international Shared Decision-Making activities: Is it time to celebrate? Probably… .
Bravo P, Harter M, McCaffery K, Giguere A, Hahlweg P, Elwyn G
Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:1-4. doi: 10.1016/j.zefq.2022.05.009. Epub 2022 May 31.
PMID: 35662496

Bringing personal perspective elicitation to the heart of shared decision-making: A scoping review.
Rake EA, Box ICH, Dreesens D, Meinders MJ, Kremer JAM, Aarts JWM, Elwyn G
Patient Educ Couns. 2022 Sep;105(9):2860-2870. doi: 10.1016/j.pec.2022.05.009. Epub 2022 May 16.
PMID: 35659466

Bidirectional Correlations Between Health Confidence and Inflammatory Bowel Disease Activity: A Nationwide Longitudinal Cohort Study.
Tse CS, Melmed GY, Siegel CA, Weng CH, Shah SA, Weaver SA, Oliver BJ, Elwyn G, van Deen WK
Inflamm Bowel Dis. 2023 Jan 5;29(1):161-166. doi: 10.1093/ibd/izac107.
PMID: 35640124

Shared Decision-making in the U.S.: Evidence exists, but implementation science must now inform policy for real change to occur.
Lu Y, Elwyn G, Moulton BW, Volk RJ, Frosch DL, Spatz ES
Z Evid Fortbild Qual Gesundhwes. 2022 Jun;171:144-149. doi: 10.1016/j.zefq.2022.04.031. Epub 2022 May 20.
PMID: 35599230

Development of an adjective-selection measure evaluating clinicians’ attitudes towards using patient decision aids: The ADOPT measure.
Aarts JWM, Dannenberg MD, Scalia P, Elwyn G
Patient Educ Couns. 2022 Aug;105(8):2785-2792. doi: 10.1016/j.pec.2022.04.002. Epub 2022 Apr 19.
PMID: 35501228

Interrupted opening statements in clinical encounters: A scoping review.
Coyle AC, Yen RW, Elwyn G
Patient Educ Couns. 2022 Aug;105(8):2653-2663. doi: 10.1016/j.pec.2022.03.026. Epub 2022 Mar 31.
PMID: 35393229

Psychometric assessment of the consideRATE questions, a new measure of serious illness experience, with an online simulation study.
Saunders CH, Durand MA, Kirkland KB, MacMartin MA, Barnato AE, Elwyn G
Patient Educ Couns. 2022 Jul;105(7):2581-2589. doi: 10.1016/j.pec.2022.01.002. Epub 2022 Jan 22.
PMID: 35260261

Response to the letter by Pieterse et al. regarding the submissive silence of others: Examining definitions of shared decision making.
Berger Z, Galasinski D, Scalia P, Dong K, Blunt HB, Elwyn G
Patient Educ Couns. 2022 Jul;105(7):2627-2628. doi: 10.1016/j.pec.2022.02.002. Epub 2022 Feb 4.
PMID: 35151503

Potential impact of encounter patient decision aids on the patient-clinician dialogue: a qualitative study on Dutch and American medical specialists’ experiences.
Rake EA, Dreesens D, Venhorst K, Meinders MJ, Geltink T, Wolswinkel JT, Dannenberg M, Kremer JAM, Elwyn G, Aarts JWM
BMJ Open. 2022 Feb 1;12(2):e048146. doi: 10.1136/bmjopen-2020-048146. Epub 2022 Feb 1.
PMID: 35105563

Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs.
Gifford AH, Ong T, Dowd C, Van Citters AD, Scalia P, Sabadosa KA, Sawicki GS
J Cyst Fibros. 2021 Dec;20 Suppl 3:9-13. doi: 10.1016/j.jcf.2021.08.034.
PMID: 34930545

Remote monitoring in telehealth care delivery across the U.S. cystic fibrosis care network.
Ong T, Van Citters AD, Dowd C, Fullmer J, List R, Pai SA, Ren CL, Scalia P, Solomon GM, Sawicki GS
J Cyst Fibros. 2021 Dec;20 Suppl 3:57-63. doi: 10.1016/j.jcf.2021.08.035.
PMID: 34930544

Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors.
Albon D, Van Citters AD, Ong T, Dieni O, Dowd C, Willis A, Sabadosa KA, Scalia P, Reno K, Oates GR, Schechter MS
J Cyst Fibros. 2021 Dec;20 Suppl 3:49-54. doi: 10.1016/j.jcf.2021.09.006.
PMID: 34930543

Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic.
Dowd C, Van Citters AD, Dieni O, Willis A, Powell L, Sabadosa KA
J Cyst Fibros. 2021 Dec;20 Suppl 3:3-8. doi: 10.1016/j.jcf.2021.08.028.
PMID: 34930539

Barriers and facilitators to implementing telehealth services during the COVID-19 pandemic: A qualitative analysis of interviews with cystic fibrosis care team members.
Van Citters AD, Dieni O, Scalia P, Dowd C, Sabadosa KA, Fliege JD, Jain M, Miller RW, Ren CL
J Cyst Fibros. 2021 Dec;20 Suppl 3:23-28. doi: 10.1016/j.jcf.2021.09.004.
PMID: 34930537

Financial impacts of the COVID-19 pandemic on cystic fibrosis care: lessons for the future.
Sawicki GS, Van Citters AD, Dieni O, Sabadosa KA, Willis A, Benitez D, Ong T, Dasenbrook EC
J Cyst Fibros. 2021 Dec;20 Suppl 3:16-20. doi: 10.1016/j.jcf.2021.09.008.
PMID: 34930535

Impact of the COVID-19 pandemic: How our response is shaping the future of cystic fibrosis care.
Sabadosa KA, Faro A, Nelson EC, Marshall BC
J Cyst Fibros. 2021 Dec;20 Suppl 3:1-2. doi: 10.1016/j.jcf.2021.09.002.
PMID: 34930534

An absence of equipoise: Examining surgeons’ decision talk during encounters with women considering breast cancer surgery.
Politi MC, Saunders CH, Grabinski VF, Yen RW, Cyr AE, Durand MA, Elwyn G
PLoS One. 2021;16(12):e0260704. doi: 10.1371/journal.pone.0260704. Epub 2021 Dec 16.
PMID: 34914705

International, national and local trends in the spread of COVID-19: a geographic view of COVID-19 spread and the role to be played by coproduction.
Schmidt P, Nelson EC, Kearney G, Kraft S, Oliver BJ
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii71-ii77. doi: 10.1093/intqhc/mzab074.
PMID: 34850905

The role of co-production in Learning Health Systems.
Gremyr A, Andersson Gare B, Thor J, Elwyn G, Batalden P, Andersson AC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii26-ii32. doi: 10.1093/intqhc/mzab072.
PMID: 34849971

Point-of-care dashboards promote coproduction of healthcare services for patients with inflammatory bowel disease.
Van Citters AD, Holthoff MM, Kennedy AM, Melmed GY, Oberai R, Siegel CA, Weaver A, Nelson EC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii40-ii47. doi: 10.1093/intqhc/mzab067.
PMID: 34849970

A ‘COVID Compass’ for navigating the pandemic.
Oliver BJ, Schmidt P, Tomlin S, Kraft SA, Fisher E, Nelson EC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii78-ii80. doi: 10.1093/intqhc/mzab053.
PMID: 34849969

International, national and local trends in the spread of COVID-19: a geographic view of COVID-19 spread and the role to be played by coproduction.
Schmidt P, Nelson EC, Kearney G, Kraft S, Oliver BJ
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii71-ii77. doi: 10.1093/intqhc/mzab074.
PMID: 34849958

The submissive silence of others: Examining definitions of shared decision making.
Berger Z, Galasinski D, Scalia P, Dong K, Blunt HB, Elwyn G
Patient Educ Couns. 2022 Jul;105(7):1980-1987. doi: 10.1016/j.pec.2021.10.026. Epub 2021 Oct 22.
PMID: 34756474

Shared decision-making interventions: An overview and a meta-analysis of their impact on vaccine uptake.
Scalia P, Durand MA, Elwyn G
J Intern Med. 2022 Apr;291(4):408-425. doi: 10.1111/joim.13405. Epub 2021 Nov 26.
PMID: 34700363

An Audio Personal Health Library of Clinic Visit Recordings for Patients and Their Caregivers (HealthPAL): User-Centered Design Approach.
Barr PJ, Haslett W, Dannenberg MD, Oh L, Elwyn G, Hassanpour S, Bonasia KL, Finora JC, Schoonmaker JA, Onsando WM, Ryan J, Bruce ML, Das AK, Arend R, Piper S, Ganoe CH
J Med Internet Res. 2021 Oct 22;23(10):e25512. doi: 10.2196/25512. Epub 2021 Oct 22.
PMID: 34677131

Relationships among Antecedents, Processes, and Outcomes for Shared Decision Making: A Cross-Sectional Survey of Patients with Lumbar Degenerative Disease.
Chen CH, Chuang HY, Lee Y, Elwyn G, Hou WH, Kuo KN
Med Decis Making. 2022 Apr;42(3):352-363. doi: 10.1177/0272989X211024980. Epub 2021 Oct 11.
PMID: 34634947

Development and piloting of four decision aids for implantable cardioverter-defibrillators in different media formats.
Wallace BC, Jones J, Masoudi FA, Nowels CT, Varosy P, Thomson R, Elwyn G, Brega AG, Vermilye T, Knoepke CE, Sandhu A, Allen LA, Matlock DD
Pacing Clin Electrophysiol. 2021 Nov;44(11):1842-1852. doi: 10.1111/pace.14365. Epub 2021 Oct 9.
PMID: 34528271

A Mixed-Methods Evaluation of Patient Education Materials for Colorectal Cancer.
Kang R, Saunders CH, Carpenter-Song EA, Moore KO, Trooboff SW, Columbo JA, Goodney PP, Wong SL, Joga Ivatury S
Dis Colon Rectum. 2021 Oct 1;64(10):1249-1258. doi: 10.1097/DCR.0000000000001917.
PMID: 34516444

Preference for and Efficacy of a PrEP Decision Aid for Women with Substance Use Disorders.
Meyer J, Price C, Tracey D, Sharpless L, Song Y, Madden L, Elwyn G, Altice F
Patient Prefer Adherence. 2021;15:1913-1927. doi: 10.2147/PPA.S315543. Epub 2021 Sep 1.
PMID: 34511887

Is Shared Decision-making Associated with Better Patient-reported Outcomes? A Longitudinal Study of Patients Undergoing Total Joint Arthroplasty.
Chrenka EA, Solberg LI, Asche SE, Dehmer SP, Ziegenfuss JY, Whitebird RR, Norton CK, Reams M, Johnson PG, Elwyn G
Clin Orthop Relat Res. 2022 Jan 1;480(1):82-91. doi: 10.1097/CORR.0000000000001920.
PMID: 34495891

Patient involvement in rheumatoid arthritis care to improve disease activity-based management in daily practice: A randomized controlled trial.
Spijk-de Jonge MJ, Weijers JM, Teerenstra S, Elwyn G, van de Laar MA, van Riel PL, Huis AM, Hulscher ME
Patient Educ Couns. 2022 May;105(5):1244-1253. doi: 10.1016/j.pec.2021.08.013. Epub 2021 Aug 14.
PMID: 34465495

Cardiology providers’ recommendations for treatments and use of patient decision aids for multivessel coronary artery disease.
Nichols EL, Elwyn G, DiScipio A, Sidhu MS, O’Malley AJ, Matlock DD, Alam S, Ross CS, Coylewright M, Malenka DJ, Brown JR
BMC Cardiovasc Disord. 2021 Aug 27;21(1):410. doi: 10.1186/s12872-021-02223-y. Epub 2021 Aug 27.
PMID: 34452596

Assessing Shared Decision-Making in Cystic Fibrosis Care Using collaboRATE: A Cross-Sectional Study of 159 Programs.
Homa K, Stevens G, Forcino R, Scalia P, Mertz P, Elwyn G
J Patient Exp. 2021;8:23743735211034032. doi: 10.1177/23743735211034032. Epub 2021 Aug 20.
PMID: 34435088

Natural language processing for automated annotation of medication mentions in primary care visit conversations.
Ganoe CH, Wu W, Barr PJ, Haslett W, Dannenberg MD, Bonasia KL, Finora JC, Schoonmaker JA, Onsando WM, Ryan J, Elwyn G, Bruce ML, Das AK, Hassanpour S
JAMIA Open. 2021 Jul;4(3):ooab071. doi: 10.1093/jamiaopen/ooab071. Epub 2021 Aug 19.
PMID: 34423262

Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis.
Spijk-de Jonge MJ, Manders SHM, Huis AMP, Elwyn G, van de Laar MAFJ, van Riel PLCM, Hulscher MEJL
Mediterr J Rheumatol. 2021 Mar;32(1):21-30. doi: 10.31138/mjr.32.1.21. Epub 2021 Mar 31.
PMID: 34386699

A shared decision-making communications workshop improves internal medicine resident skill, risk-benefit education, and counseling attitude.
Amell F, Park C, Sheth P, Elwyn G, LeFrancois D
Patient Educ Couns. 2022 Apr;105(4):1018-1024. doi: 10.1016/j.pec.2021.07.040. Epub 2021 Jul 28.
PMID: 34362609

Identifying and Predicting the Goals and Concerns Prioritised by Individuals with Inflammatory Bowel Disease.
Tse CS, Van Citters AD, Ricci B, Freundlich NZ, Lee M, Shah SA, Melmed GY, Siegel CA, van Deen WK, IBD Qorus
J Crohns Colitis. 2022 Mar 14;16(3):379-388. doi: 10.1093/ecco-jcc/jjab142.
PMID: 34350943

Unexpected Outcomes of Measuring Decision Regret: Using a Breast Cancer Decision-Making Case Example.
Oman K, Durand MA, Elwyn G, Yen RW, Marx C, Politi MC
Patient. 2022 Mar;15(2):151-155. doi: 10.1007/s40271-021-00543-x. Epub 2021 Aug 2.
PMID: 34337674

Comparing the impact of an icon array versus a bar graph on preference and understanding of risk information: Results from an online, randomized study.
Scalia P, Schubbe DC, Lu ES, Durand MA, Frascara J, Noel G, O’Malley AJ, Elwyn G
PLoS One. 2021;16(7):e0253644. doi: 10.1371/journal.pone.0253644. Epub 2021 Jul 23.
PMID: 34297713

A systematic review of decision aids for gender affirming therapy.
Scalia P, Tighe KM, Elwyn G, Bagley PJ, Blunt HB, Boh B, Walters OC, Moses RA
Transl Androl Urol. 2021 Jun;10(6):2574-2582. doi: 10.21037/tau-20-1000.
PMID: 34295744

Cost talk: protocol for a stepped-wedge cluster randomized trial of an intervention helping patients and urologic surgeons discuss costs of care for slow-growing prostate cancer during shared decision-making.
Politi MC, Forcino RC, Parrish K, Durand MA, O’Malley AJ, Elwyn G
Trials. 2021 Jun 29;22(1):422. doi: 10.1186/s13063-021-05369-4. Epub 2021 Jun 29.
PMID: 34187547

Measuring Patient Experiences of Integration in Health Care Delivery: Psychometric Validation of IntegRATE Under Controlled Conditions.
Thompson R, Stevens G, Elwyn G
J Patient Exp. 2021;8:23743735211007346. doi: 10.1177/23743735211007346. Epub 2021 Apr 13.
PMID: 34179413

A Systematic Review and Meta-Analysis of Patient Decision Aids for Socially Disadvantaged Populations: Update from the International Patient Decision Aid Standards (IDPAS).
Yen RW, Smith J, Engel J, Muscat DM, Smith SK, Mancini J, Perestelo-Perez L, Elwyn G, O’Malley AJ, Leyenaar JK, Mac O, Cadet T, Giguere A, Housten AJ, Langford A, McCaffery K, Durand MA
Med Decis Making. 2021 Oct;41(7):870-896. doi: 10.1177/0272989X211020317. Epub 2021 Jun 21.
PMID: 34151614

Personalized, Electronic Health Record-Integrated Decision Aid for Stroke Prevention in Atrial Fibrillation: A Small Cluster Randomized Trial and Qualitative Analysis of Efficacy and Acceptability.
Schott SL, Berkowitz J, Dodge SE, Petersen CL, Saunders CH, Sobti NK, Xu K, Coylewright M
Circ Cardiovasc Qual Outcomes. 2021 Jun;14(6):e007329. doi: 10.1161/CIRCOUTCOMES.120.007329. Epub 2021 Jun 10.
PMID: 34107740

Durand MA, Yen RW, O’Malley AJ, Schubbe D, Politi MC, Saunders CH, Dhage S, Rosenkranz K, Weichman K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, Mitchell M, Walling L, Marx C, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bergin E, Goodwin C, Acosta J, Miller C, Harris C, Barth R, Aft R, Feldman S, Cyr AE, Angeles C, Forcino R, Scalia P, Aarts JWM, van den Muijsenbergh M, Jiang S, Elwyn G
. 2021 Jun;
PMID: 36917651

Development of Balanced Whole System Value Measures for Inflammatory Bowel Disease Care in the IBD Qorus Collaborative Using a Modified Delphi Process.
Oliver BJ, Kennedy AM, van Deen WK, Weaver SA, Heller C, Holthoff MM, Bank J, Melmed GY, Siegel CA, Nelson EC
Inflamm Bowel Dis. 2022 Mar 2;28(3):327-336. doi: 10.1093/ibd/izab091.
PMID: 34037211

‘Because Everybody is so Different’: a qualitative analysis of the lived experiences and information needs of rectal cancer survivors.
Saunders CH, Goldwag JL, Read JT, Durand MA, Elwyn G, Ivatury SJ
BMJ Open. 2021 May 19;11(5):e043245. doi: 10.1136/bmjopen-2020-043245. Epub 2021 May 19.
PMID: 34011586

Processes for evidence summarization for patient decision aids: A Delphi consensus study.
Scalia P, Saunders CH, Dannenberg M, Mc Giguere A, Alper BS, Hoffmann T, Perestelo-Perez L, Durand MA, Elwyn G
Health Expect. 2021 Aug;24(4):1178-1186. doi: 10.1111/hex.13244. Epub 2021 May 15.
PMID: 33991160

Implementation and sustainability factors of two early-stage breast cancer conversation aids in diverse practices.
Schubbe D, Yen RW, Saunders CH, Elwyn G, Forcino RC, O’Malley AJ, Politi MC, Margenthaler J, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bradley A, Goodwin C, van den Muijsenbergh M, Aarts JWM, Scalia P, Durand MA
Implement Sci. 2021 May 10;16(1):51. doi: 10.1186/s13012-021-01115-1. Epub 2021 May 10.
PMID: 33971913

Integrating Option Grid Patient Decision Aids in the Epic Electronic Health Record: Case Study at 5 Health Systems.
Scalia P, Ahmad F, Schubbe D, Forcino R, Durand MA, Barr PJ, Elwyn G
J Med Internet Res. 2021 May 3;23(5):e22766. doi: 10.2196/22766. Epub 2021 May 3.
PMID: 33938806

Can shared decision making address COVID-19 vaccine hesitancy?
Durand MA, Scalia P, Elwyn G
BMJ Evid Based Med. 2022 Jun;27(3):159-161. doi: 10.1136/bmjebm-2021-111695. Epub 2021 Apr 26.
PMID: 33903205

Policy, accreditation and leadership: creating the conditions for effective coproduction of health, healthcare and science.
Lachman P, Nelson EC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii1-ii3. doi: 10.1093/intqhc/mzab065.
PMID: 33822945

Science-informed practice: an essential epistemologic contributor to health-care coproduction.
Batalden P, Ovalle A, Foster T, Elwyn G
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii4-ii5. doi: 10.1093/intqhc/mzab054.
PMID: 33755124

The development of incorpoRATE: A measure of physicians’ willingness to incorporate shared decision making into practice.
Berkowitz J, Martinez-Camblor P, Stevens G, Elwyn G
Patient Educ Couns. 2021 Sep;104(9):2327-2337. doi: 10.1016/j.pec.2021.02.040. Epub 2021 Feb 25.
PMID: 33744056

Effectiveness of shared decision-making intervention in patients with lumbar degenerative diseases: A randomized controlled trial.
Chen CH, Kang YN, Chiu PY, Huang YJ, Elwyn G, Wu MH, Kang JH, Hou WH, Kuo KN
Patient Educ Couns. 2021 Oct;104(10):2498-2504. doi: 10.1016/j.pec.2021.03.002. Epub 2021 Mar 10.
PMID: 33741234

Encounter decision aids to facilitate shared decision-making with women experiencing heavy menstrual bleeding or symptomatic uterine fibroids: A before-after study.
Aarts JWM, Thompson R, Alam SS, Dannenberg M, Elwyn G, Foster TC
Patient Educ Couns. 2021 Sep;104(9):2259-2265. doi: 10.1016/j.pec.2021.02.027. Epub 2021 Feb 15.
PMID: 33632633

Shared decision making: What is the work?
Elwyn G
Patient Educ Couns. 2021 Jul;104(7):1591-1595. doi: 10.1016/j.pec.2020.11.032. Epub 2020 Dec 1.
PMID: 33353840

Do collaboRATE Scores Reflect Differences in Perceived Shared Decision-Making Across Diverse Patient Populations? Evidence From a Large-Scale Patient Experience Survey in the United States.
Forcino RC, Thygeson M, O’Malley AJ, Meinders MJ, Westert GP, Elwyn G
J Patient Exp. 2020 Oct;7(5):778-787. doi: 10.1177/2374373519891039. Epub 2019 Dec 1.
PMID: 33294615

Measuring Patient-Reported Shared Decision-Making to Promote Performance Transparency and Value-Based Payment: Assessment of collaboRATE’s Group-Level Reliability.
Forcino RC, Thygeson M, O’Malley AJ, Meinders MJ, Westert GP, Elwyn G
J Patient Exp. 2020 Oct;7(5):742-748. doi: 10.1177/2374373519884835. Epub 2019 Nov 3.
PMID: 33294610

Goal-Based Shared Decision-Making: Developing an Integrated Model.
Elwyn G, Vermunt NPCA
J Patient Exp. 2020 Oct;7(5):688-696. doi: 10.1177/2374373519878604. Epub 2019 Oct 17.
PMID: 33294602

Does the use of patient decision aids lead to cost savings? a systematic review.
Scalia P, Barr PJ, O’Neill C, Crealey GE, Bagley PJ, Blunt HB, Elwyn G
BMJ Open. 2020 Nov 16;10(11):e036834. doi: 10.1136/bmjopen-2020-036834. Epub 2020 Nov 16.
PMID: 33199416

Graph literacy matters: Examining the association between graph literacy, health literacy, and numeracy in a Medicaid eligible population.
Durand MA, Yen RW, O’Malley J, Elwyn G, Mancini J
PLoS One. 2020;15(11):e0241844. doi: 10.1371/journal.pone.0241844. Epub 2020 Nov 11.
PMID: 33175891

What matters most: Randomized controlled trial of breast cancer surgery conversation aids across socioeconomic strata.
Durand MA, Yen RW, O’Malley AJ, Schubbe D, Politi MC, Saunders CH, Dhage S, Rosenkranz K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, Walling L, Marx CM, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bergin E, Goodwin C, Miller C, Harris C, Barth RJ Jr, Aft R, Feldman S, Cyr AE, Angeles CV, Jiang S, Elwyn G
Cancer. 2021 Feb 1;127(3):422-436. doi: 10.1002/cncr.33248. Epub 2020 Nov 10.
PMID: 33170506

COproduction VALUE creation in healthcare service (CO-VALUE): an international multicentre protocol to describe the application of a model of value creation for use in systems of coproduced healthcare services and to evaluate the initial feasibility, utility and acceptability of associated system-level value creation assessment approaches.
Oliver BJ, Batalden PB, DiMilia PR, Forcino RC, Foster TC, Nelson EC, Garre BA
BMJ Open. 2020 Oct 5;10(10):e037578. doi: 10.1136/bmjopen-2020-037578. Epub 2020 Oct 5.
PMID: 33020095

Women Who Are Young, Non-White, and with Lower Socioeconomic Status Report Higher Financial Toxicity up to 1 Year After Breast Cancer Surgery: A Mixed-Effects Regression Analysis.
Politi MC, Yen RW, Elwyn G, O’Malley AJ, Saunders CH, Schubbe D, Forcino R, Durand MA
Oncologist. 2021 Jan;26(1):e142-e152. doi: 10.1002/onco.13544. Epub 2020 Oct 12.
PMID: 33000504

“All about the money?” A qualitative interview study examining organizational- and system-level characteristics that promote or hinder shared decision-making in cancer care in the United States.
Scholl I, Kobrin S, Elwyn G
Implement Sci. 2020 Sep 21;15(1):81. doi: 10.1186/s13012-020-01042-7. Epub 2020 Sep 21.
PMID: 32957962

User-Centered Design of the consideRATE Questions, a Measure of People’s Experiences When They Are Seriously Ill.
Saunders CH, Durand MA, Scalia P, Kirkland KB, MacMartin MA, Barnato AE, Milne DW, Collison J, Jaggars A, Butt T, Wasp G, Nelson E, Elwyn G
J Pain Symptom Manage. 2021 Mar;61(3):555-565.e5. doi: 10.1016/j.jpainsymman.2020.08.002. Epub 2020 Aug 16.
PMID: 32814165

Text-only and picture conversation aids both supported shared decision making for breast cancer surgery: Analysis from a cluster randomized trial.
Yen RW, Durand MA, Harris C, Cohen S, Ward A, O’Malley AJ, Schubbe D, Saunders CH, Elwyn G
Patient Educ Couns. 2020 Nov;103(11):2235-2243. doi: 10.1016/j.pec.2020.07.015. Epub 2020 Jul 28.
PMID: 32782181

Assessing Patients’ Perceptions of Clinician Communication: Acceptability of Brief Point-of-Care Surveys in Primary Care.
Dryden EM, Hyde JK, Wormwood JB, Wu J, Calloway R, Cutrona SL, Elwyn G, Fix GM, Orner MB, Shimada SL, Bokhour BG
J Gen Intern Med. 2020 Oct;35(10):2990-2999. doi: 10.1007/s11606-020-06062-z. Epub 2020 Aug 3.
PMID: 32748346

Routine patient-reported experience measurement of shared decision-making in the USA: a qualitative study of the current state according to frontrunners.
Forcino RC, Meinders MJ, Engel JA, O’Malley AJ, Elwyn G
BMJ Open. 2020 Jun 7;10(6):e037087. doi: 10.1136/bmjopen-2020-037087. Epub 2020 Jun 7.
PMID: 32513894

Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices.
Lyles CR, Nelson EC, Frampton S, Dykes PC, Cemballi AG, Sarkar U
Ann Intern Med. 2020 Jun 2;172(11 Suppl):S123-S129. doi: 10.7326/M19-0876.
PMID: 32479176

Using pictures to convey health information: A systematic review and meta-analysis of the effects on patient and consumer health behaviors and outcomes.
Schubbe D, Scalia P, Yen RW, Saunders CH, Cohen S, Elwyn G, van den Muijsenbergh M, Durand MA
Patient Educ Couns. 2020 Oct;103(10):1935-1960. doi: 10.1016/j.pec.2020.04.010. Epub 2020 May 11.
PMID: 32466864

Can Consent to Participate in Clinical Research Involve Shared Decision Making?
Moulton H, Moulton B, Lahey T, Elwyn G
AMA J Ethics. 2020 May 1;22(5):E365-371. doi: 10.1001/amajethics.2020.365. Epub 2020 May 1.
PMID: 32449651

Sliding-Scale Shared Decision Making for Patients With Reduced Capacity.
Lahey T, Elwyn G
AMA J Ethics. 2020 May 1;22(5):E358-364. doi: 10.1001/amajethics.2020.358. Epub 2020 May 1.
PMID: 32449650

Implications for Telehealth in a Postpandemic Future: Regulatory and Privacy Issues.
Shachar C, Engel J, Elwyn G
JAMA. 2020 Jun 16;323(23):2375-2376. doi: 10.1001/jama.2020.7943.
PMID: 32421170

Formative evaluation of a dashboard to support coproduction of healthcare services in cystic fibrosis.
Van Citters AD, Gifford AH, Brady C, Dunitz JM, Elmhirst M, Flath J, Laguna TA, Moore B, Prickett ML, Riordan M, Savant AP, Gore W, Jian S, Soper M, Marshall BC, Nelson EC, Sabadosa KA
J Cyst Fibros. 2020 Sep;19(5):768-776. doi: 10.1016/j.jcf.2020.03.009. Epub 2020 Apr 27.
PMID: 32354650

Understanding unwarranted variation in clinical practice: a focus on network effects, reflective medicine and learning health systems.
Atsma F, Elwyn G, Westert G
Int J Qual Health Care. 2020 Jun 4;32(4):271-274. doi: 10.1093/intqhc/mzaa023.
PMID: 32319525

The association between patients’ preferred treatment after the use of a patient decision aid and their choice of eventual treatment.
Latenstein CSS, Thunnissen FM, Thomeer BJM, van Wely BJ, Meinders MJ, Elwyn G, de Reuver PR
Health Expect. 2020 Jun;23(3):651-658. doi: 10.1111/hex.13045. Epub 2020 Mar 13.
PMID: 32167653

A qualitative study of design stakeholders’ views of developing and implementing a registry-based learning health system.
Dixon-Woods M, Campbell A, Chang T, Martin G, Georgiadis A, Heney V, Chew S, Van Citters A, Sabadosa KA, Nelson EC
Implement Sci. 2020 Mar 6;15(1):16. doi: 10.1186/s13012-020-0976-1. Epub 2020 Mar 6.
PMID: 32143678

No date for the PROM: the association between patient-reported health events and clinical coding in primary care.
Barr PJ, Berry SA, Gozansky WS, McQuillan DB, Ross C, Carmichael D, Austin AM, Satterlund TD, Schifferdecker KE, Council L, Dannenberg MD, Wampler AT, Nelson EC, Skinner J
J Patient Rep Outcomes. 2020 Mar 2;4(1):17. doi: 10.1186/s41687-020-0183-5. Epub 2020 Mar 2.
PMID: 32124102

The Learning Curve for Shared Decision-making in Symptomatic Aortic Stenosis.
Coylewright M, O’Neill E, Sherman A, Gerling M, Adam K, Xu K, Grande SW, Dauerman HL, Dodge SE, Sobti NK, Saunders CH, Schott SL, Elwyn G, Durand MA
JAMA Cardiol. 2020 Apr 1;5(4):442-448. doi: 10.1001/jamacardio.2019.5719.
PMID: 31995126

Does a Mobile app improve patients’ knowledge of stroke risk factors and health-related quality of life in patients with stroke? A randomized controlled trial.
Kang YN, Shen HN, Lin CY, Elwyn G, Huang SC, Wu TF, Hou WH
BMC Med Inform Decis Mak. 2019 Dec 21;19(1):282. doi: 10.1186/s12911-019-1000-z. Epub 2019 Dec 21.
PMID: 31864348

Encounter Decision Aids Can Prompt Breast Cancer Surgery Cost Discussions: Analysis of Recorded Consultations.
Politi MC, Yen RW, Elwyn G, Kurien N, Czerwinski SG, Schubbe D, Saunders CH, Durand MA
Med Decis Making. 2020 Jan;40(1):62-71. doi: 10.1177/0272989X19893308. Epub 2019 Dec 12.
PMID: 31829111

Consistency of Recommendations for Evaluation and Management of Hypertension.
Alper BS, Price A, van Zuuren EJ, Fedorowicz Z, Shaughnessy AF, Oettgen P, Elwyn G, Qaseem A, Kunnamo I, Gupta U, Carter DD, Mittelman M, Berg-Nelson C, Mayer M
JAMA Netw Open. 2019 Nov 1;2(11):e1915975. doi: 10.1001/jamanetworkopen.2019.15975. Epub 2019 Nov 1.
PMID: 31755945

Medical Students’ Knowledge and Attitudes Toward Shared Decision Making: Results From a Multinational, Cross-Sectional Survey.
Yen RW, Barr PJ, Cochran N, Aarts JW, Legare F, Reed M, O’Malley AJ, Scalia P, Painchaud Guerard G, Backer G, Reilly C, Elwyn G, Durand MA
MDM Policy Pract. 2019 Jul-Dec;4(2):2381468319885871. doi: 10.1177/2381468319885871. Epub 2019 Nov 8.
PMID: 31742232

Shared Decision-Making for Rectal Cancer Treatment: A Path Forward.
Ivatury SJ, Durand MA, Elwyn G
Dis Colon Rectum. 2019 Dec;62(12):1412-1413. doi: 10.1097/DCR.0000000000001454.
PMID: 31725575

Investigation of factors influencing the implementation of two shared decision-making interventions in contraceptive care: a qualitative interview study among clinical and administrative staff.
Munro S, Manski R, Donnelly KZ, Agusti D, Stevens G, Banach M, Boardman MB, Brady P, Bradt CC, Foster T, Johnson DJ, Norsigian J, Nothnagle M, Shepherd HL, Stern L, Trevena L, Elwyn G, Thompson R
Implement Sci. 2019 Nov 9;14(1):95. doi: 10.1186/s13012-019-0941-z. Epub 2019 Nov 9.
PMID: 31706329

The impact of decision aids in patients with colorectal cancer: a systematic review.
Goldwag J, Marsicovetere P, Scalia P, Johnson HA, Durand MA, Elwyn G, Ivatury SJ
BMJ Open. 2019 Sep 12;9(9):e028379. doi: 10.1136/bmjopen-2018-028379. Epub 2019 Sep 12.
PMID: 31515416

Coproduction: when users define quality.
Elwyn G, Nelson E, Hager A, Price A
BMJ Qual Saf. 2020 Sep;29(9):711-716. doi: 10.1136/bmjqs-2019-009830. Epub 2019 Sep 5.
PMID: 31488570

Implementation of the uterine fibroids Option Grid patient decision aids across five organizational settings: a randomized stepped-wedge study protocol.
Scalia P, Durand MA, Forcino RC, Schubbe D, Barr PJ, O’Brien N, O’Malley AJ, Foster T, Politi MC, Laughlin-Tommaso S, Banks E, Madden T, Anchan RM, Aarts JWM, Velentgas P, Balls-Berry J, Bacon C, Adams-Foster M, Mulligan CC, Venable S, Cochran NE, Elwyn G
Implement Sci. 2019 Sep 2;14(1):88. doi: 10.1186/s13012-019-0933-z. Epub 2019 Sep 2.
PMID: 31477140

Chronic Condition Measurement Requires Engagement, Not Measurement Alone.
Austin AM, Carmichael D, Berry S, Gozansky WS, Nelson EC, Skinner JS, Barr PJ
J Ambul Care Manage. 2019 Oct/Dec;42(4):295-304. doi: 10.1097/JAC.0000000000000300.
PMID: 31449165

Conversations between Latina mothers and their child’s mental health provider: An observational study of shared decision-making regarding pediatric patient mental health needs.
Hale KL, Wallace DD, Blanco-Duran D, Annis IE, Guzman LE, Garcia SJ, Perez Jolles M, Sleath BL, Elwyn G, Stein GL, Thomas KC
Patient Educ Couns. 2020 Jan;103(1):96-102. doi: 10.1016/j.pec.2019.08.013. Epub 2019 Aug 12.
PMID: 31447200

Measuring triadic decision making in older patients with multiple chronic conditions: Observer OPTION(MCC).
Pel-Littel RE, Buurman BM, van de Pol MH, Yilmaz NG, Tulner LR, Minkman MM, Scholte Op Reimer WJM, Elwyn G, van Weert JCM
Patient Educ Couns. 2019 Nov;102(11):1969-1976. doi: 10.1016/j.pec.2019.06.020. Epub 2019 Jun 21.
PMID: 31279614

Attitudes of Physicians to Recording Clinical Encounters: Responses to an Online Survey.
Joshi A, Farberov M, Demissie S, Smith MC, Elwyn G
J Gen Intern Med. 2020 Mar;35(3):942-943. doi: 10.1007/s11606-019-05127-y. Epub 2019 Jul 3.
PMID: 31270783

Promoting or Undermining Quality Decision Making? A Qualitative Content Analysis of Patient Decision Aids Comparing Surgical and Medication Abortion.
Donnelly KZ, Elwyn G, Theiler R, Thompson R
Womens Health Issues. 2019 Sep-Oct;29(5):414-423. doi: 10.1016/j.whi.2019.05.007. Epub 2019 Jun 29.
PMID: 31266679

Goal setting is insufficiently recognised as an essential part of shared decision-making in the complex care of older patients: a framework analysis.
Vermunt N, Elwyn G, Westert G, Harmsen M, Olde Rikkert M, Meinders M
BMC Fam Pract. 2019 Jun 6;20(1):76. doi: 10.1186/s12875-019-0966-z. Epub 2019 Jun 6.
PMID: 31170920

User-testing an interactive option grid decision aid for prostate cancer screening: lessons to improve usability.
Scalia P, Durand MA, Faber M, Kremer JA, Song J, Elwyn G
BMJ Open. 2019 May 27;9(5):e026748. doi: 10.1136/bmjopen-2018-026748. Epub 2019 May 27.
PMID: 31133587

A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting.
Dreesens D, Stiggelbout A, Agoritsas T, Elwyn G, Flottorp S, Grimshaw J, Kremer L, Santesso N, Stacey D, Treweek S, Armstrong M, Gagliardi A, Hill S, Legare F, Ryan R, Vandvik P, van der Weijden T
Patient Educ Couns. 2019 Oct;102(10):1898-1904. doi: 10.1016/j.pec.2019.05.003. Epub 2019 May 4.
PMID: 31118137

Presenting time-based risks of stroke and death for Patients facing carotid stenosis treatment options: Patients prefer pie charts over icon arrays.
Scalia P, O’Malley AJ, Durand MA, Goodney PP, Elwyn G
Patient Educ Couns. 2019 Oct;102(10):1939-1944. doi: 10.1016/j.pec.2019.05.004. Epub 2019 May 9.
PMID: 31101429

Availability and effectiveness of decision aids for supporting shared decision making in patients with advanced colorectal and lung cancer: Results from a systematic review.
Spronk I, Meijers MC, Heins MJ, Francke AL, Elwyn G, van Lindert A, van Dulmen S, van Vliet LM
Eur J Cancer Care (Engl). 2019 May;28(3):e13079. doi: 10.1111/ecc.13079. Epub 2019 May 8.
PMID: 31066142

Developing a toolkit to implement the Statin Choice Conversation Aid at scale: application of a work reduction model.
Leppin AL, Boehmer KR, Branda ME, Shah ND, Hargraves I, Dick S, Elwyn G, Ting HH, Ye S, Gilles R, Abbas M, Alexander A, Montori VM
BMC Health Serv Res. 2019 Apr 24;19(1):249. doi: 10.1186/s12913-019-4055-8. Epub 2019 Apr 24.
PMID: 31018840

Turning Feed-forward and Feedback Processes on Patient-reported Data into Intelligent Action and Informed Decision-making: Case Studies and Principles.
Oliver BJ, Nelson EC, Kerrigan CL
Med Care. 2019 May;57 Suppl 5 Suppl 1:S31-S37. doi: 10.1097/MLR.0000000000001088.
PMID: 30985594

Healthcare Options for People Experiencing Depression (HOPE*D): the development and pilot testing of an encounter-based decision aid for use in primary care.
Barr PJ, Forcino RC, Dannenberg MD, Mishra M, Turner E, Zisman-Ilani Y, Matthews J, Hinn M, Bruce M, Elwyn G
BMJ Open. 2019 Apr 8;9(4):e025375. doi: 10.1136/bmjopen-2018-025375. Epub 2019 Apr 8.
PMID: 30962232

Modified Delphi survey for the evidence summarisation of patient decision aids: Study protocol.
Durand MA, Dannenberg MD, Saunders CH, Giguere AMC, Alper BS, Hoffmann T, Perestelo-Perez L, Campbell ST, Elwyn G
BMJ Open. 2019 Mar 23;9(3):e026701. doi: 10.1136/bmjopen-2018-026701. Epub 2019 Mar 23.
PMID: 30904876

Comparing Three Methods for Reducing Psychotropic Use in Older Demented Spanish Care Home Residents.
Weeks WB, Mishra MK, Curto D, Petersen CL, Cano P, Hswen Y, Serra SV, Elwyn G, Godfrey MM, Soro PS, Tomas JF
J Am Geriatr Soc. 2019 Jul;67(7):1444-1453. doi: 10.1111/jgs.15855. Epub 2019 Mar 8.
PMID: 30848834

Serious Choices: A Systematic Environmental Scan of Decision Aids and Their Use for Seriously Ill People Near Death.
Saunders CH, Patel K, Kang H, Elwyn G, Kirkland K, Durand MA
J Hosp Med. 2019 May;14(5):294-302. doi: 10.12788/jhm.3110.
PMID: 30794146

Using artificial intelligence to assess clinicians’ communication skills.
Ryan P, Luz S, Albert P, Vogel C, Normand C, Elwyn G
BMJ. 2019 Jan 18;364:l161. doi: 10.1136/bmj.l161. Epub 2019 Jan 18.
PMID: 30659013

Bring on the Machines: Could Machine Learning Improve the Quality of Patient Education Materials? A Systematic Search and Rapid Review.
Saunders CH, Petersen CL, Durand MA, Bagley PJ, Elwyn G
JCO Clin Cancer Inform. 2018 Dec;2:1-16. doi: 10.1200/CCI.18.00010.
PMID: 30652611

Adaptation and qualitative evaluation of encounter decision aids in breast cancer care.
Hahlweg P, Witzel I, Muller V, Elwyn G, Durand MA, Scholl I
Arch Gynecol Obstet. 2019 Apr;299(4):1141-1149. doi: 10.1007/s00404-018-5035-7. Epub 2019 Jan 16.
PMID: 30649604

The impact and utility of encounter patient decision aids: Systematic review, meta-analysis and narrative synthesis.
Scalia P, Durand MA, Berkowitz JL, Ramesh NP, Faber MJ, Kremer JAM, Elwyn G
Patient Educ Couns. 2019 May;102(5):817-841. doi: 10.1016/j.pec.2018.12.020. Epub 2018 Dec 21.
PMID: 30612829

Coordinating Mental Health Services for People with Serious Mental Illness: A Scoping Review of Transitions from Psychiatric Hospital to Community.
Storm M, Husebo AML, Thomas EC, Elwyn G, Zisman-Ilani Y
Adm Policy Ment Health. 2019 May;46(3):352-367. doi: 10.1007/s10488-018-00918-7.
PMID: 30604004

Adapting the Breast Cancer Surgery Decision Quality Instrument for Lower Socioeconomic Status: Improving Readability, Acceptability, and Relevance.
Durand MA, Song J, Yen RW, Sepucha K, Politi MC, Dhage S, Rosenkranz K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, O’Malley AJ, Volk RJ, Ozanne E, Percac-Lima S, Acosta J, Mir N, Scalia P, Ward A, Elwyn G
MDM Policy Pract. 2018 Jul-Dec;3(2):2381468318811839. doi: 10.1177/2381468318811839. Epub 2018 Nov 25.
PMID: 30515461

End-user views of an electronic encounter decision aid linked to routine depression screening.
Dannenberg MD, Bienvenida JCM, Bruce ML, Nguyen T, Hinn M, Matthews J, Bartels SJ, Elwyn G, Barr PJ
Patient Educ Couns. 2019 Mar;102(3):555-563. doi: 10.1016/j.pec.2018.10.002. Epub 2018 Oct 3.
PMID: 30497800

Assessing Preference Shift and Effects on Patient Knowledge and Decisional Conflict: Cross-Sectional Study of an Interactive Prostate-Specific Antigen Test Patient Decision Aid.
Scalia P, Elwyn G, Kremer J, Faber M, Durand MA
JMIR Cancer. 2018 Nov 21;4(2):e11102. doi: 10.2196/11102. Epub 2018 Nov 21.
PMID: 30463840

How do healthcare professionals working in accountable care organisations understand patient activation and engagement? Qualitative interviews across two time points.
Mishra MK, Saunders CH, Rodriguez HP, Shortell SM, Fisher E, Elwyn G
BMJ Open. 2018 Oct 31;8(10):e023068. doi: 10.1136/bmjopen-2018-023068. Epub 2018 Oct 31.
PMID: 30385443

US-based cross-sectional survey of clinicians’ knowledge and attitudes about shared decision-making across healthcare professions and specialties.
Forcino RC, Yen RW, Aboumrad M, Barr PJ, Schubbe D, Elwyn G, Durand MA
BMJ Open. 2018 Oct 18;8(10):e022730. doi: 10.1136/bmjopen-2018-022730. Epub 2018 Oct 18.
PMID: 30341128

Facing obesity: Adapting the collaborative deliberation model to deal with a complex long-term problem.
Luig T, Elwyn G, Anderson R, Campbell-Scherer DL
Patient Educ Couns. 2019 Feb;102(2):291-300. doi: 10.1016/j.pec.2018.09.021. Epub 2018 Sep 28.
PMID: 30292424

The Promise of Electronic Health Records to Promote Shared Decision Making: A Narrative Review and a Look Ahead.
Kuo AM, Thavalathil B, Elwyn G, Nemeth Z, Dang S
Med Decis Making. 2018 Nov;38(8):1040-1045. doi: 10.1177/0272989X18796223. Epub 2018 Sep 18.
PMID: 30226100

Does pictorial health information improve health behaviours and other outcomes? A systematic review protocol.
Schubbe D, Cohen S, Yen RW, Muijsenbergh MV, Scalia P, Saunders CH, Durand MA
BMJ Open. 2018 Aug 13;8(8):e023300. doi: 10.1136/bmjopen-2018-023300. Epub 2018 Aug 13.
PMID: 30104319

Shared decision is the only outcome that matters when it comes to evaluating evidence-based practice.
McCormack J, Elwyn G
BMJ Evid Based Med. 2018 Aug;23(4):137-139. doi: 10.1136/bmjebm-2018-110922. Epub 2018 Jul 12.
PMID: 30002077

Improving shared decision-making in advanced Parkinson’s disease: protocol of a mixed methods feasibility study.
Nijhuis FAP, Elwyn G, Bloem BR, Post B, Faber MJ
Pilot Feasibility Stud. 2018;4:94. doi: 10.1186/s40814-018-0286-4. Epub 2018 Jul 4.
PMID: 29997902

Existing evidence summarization methods cannot guarantee trustworthy patient decision aids.
Dannenberg MD, Durand MA, Montori VM, Reilly C, Elwyn G
J Clin Epidemiol. 2018 Oct;102:69-77. doi: 10.1016/j.jclinepi.2018.06.003. Epub 2018 Jun 19.
PMID: 29928973

Exploring the use of Option Grid™ patient decision aids in a sample of clinics in Poland.
Scalia P, Elwyn G, Barr P, Song J, Zisman-Ilani Y, Lesniak M, Mullin S, Kurek K, Bushell M, Durand MA
Z Evid Fortbild Qual Gesundhwes. 2018 Jul;134:1-8. doi: 10.1016/j.zefq.2018.04.002. Epub 2018 May 29.
PMID: 29858145

Continue, adjust, or stop antipsychotic medication: developing and user testing an encounter decision aid for people with first-episode and long-term psychosis.
Zisman-Ilani Y, Shern D, Deegan P, Kreyenbuhl J, Dixon L, Drake R, Torrey W, Mishra M, Gorbenko K, Elwyn G
BMC Psychiatry. 2018 May 22;18(1):142. doi: 10.1186/s12888-018-1707-x. Epub 2018 May 22.
PMID: 29788933

Digital clinical encounters.
Elwyn G, Barr PJ, Piper S
BMJ. 2018 May 14;361:k2061. doi: 10.1136/bmj.k2061. Epub 2018 May 14.
PMID: 29760149

A proposal for the development of national certification standards for patient decision aids in the US.
Elwyn G, Burstin H, Barry MJ, Corry MP, Durand MA, Lessler D, Saigal C
Health Policy. 2018 Jul;122(7):703-706. doi: 10.1016/j.healthpol.2018.04.010. Epub 2018 Apr 27.
PMID: 29728288

Interventions to Engage Affective Forecasting in Health-Related Decision Making: A Meta-Analysis.
Ellis EM, Elwyn G, Nelson WL, Scalia P, Kobrin SC, Ferrer RA
Ann Behav Med. 2018 Feb 5;52(2):157-174. doi: 10.1093/abm/kax024.
PMID: 29538630

Organizational- and system-level characteristics that influence implementation of shared decision-making and strategies to address them – a scoping review.
Scholl I, LaRussa A, Hahlweg P, Kobrin S, Elwyn G
Implement Sci. 2018 Mar 9;13(1):40. doi: 10.1186/s13012-018-0731-z. Epub 2018 Mar 9.
PMID: 29523167

What matters most: protocol for a randomized controlled trial of breast cancer surgery encounter decision aids across socioeconomic strata.
Durand MA, Yen RW, O’Malley AJ, Politi MC, Dhage S, Rosenkranz K, Weichman K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Song J, Acosta J, Mir N, Elwyn G
BMC Public Health. 2018 Feb 13;18(1):241. doi: 10.1186/s12889-018-5109-2. Epub 2018 Feb 13.
PMID: 29439691

Shared Decision Making for Psychiatric Rehabilitation Services Before Discharge from Psychiatric Hospitals.
Zisman-Ilani Y, Roe D, Elwyn G, Kupermintz H, Patya N, Peleg I, Karnieli-Miller O
Health Commun. 2019 May;34(6):631-637. doi: 10.1080/10410236.2018.1431018. Epub 2018 Feb 2.
PMID: 29393685

Psychometric properties of the German version of Observer OPTION(5).
Kolker M, Topp J, Elwyn G, Harter M, Scholl I
BMC Health Serv Res. 2018 Jan 31;18(1):74. doi: 10.1186/s12913-018-2891-6. Epub 2018 Jan 31.
PMID: 29386031

Human-Machine Collaboration-A New Form of Paternalism?
Scholl I, Osarogiagbon RU, Elwyn G
JAMA Oncol. 2018 Apr 1;4(4):589. doi: 10.1001/jamaoncol.2017.1507.
PMID: 29270618

A three-goal model for patients with multimorbidity: A qualitative approach.
Vermunt NP, Harmsen M, Elwyn G, Westert GP, Burgers JS, Olde Rikkert MG, Faber MJ
Health Expect. 2018 Apr;21(2):528-538. doi: 10.1111/hex.12647. Epub 2017 Nov 28.
PMID: 29193557

A three-talk model for shared decision making: multistage consultation process.
Elwyn G, Durand MA, Song J, Aarts J, Barr PJ, Berger Z, Cochran N, Frosch D, Galasiński D, Gulbrandsen P, Han PKJ, Harter M, Kinnersley P, Lloyd A, Mishra M, Perestelo-Perez L, Scholl I, Tomori K, Trevena L, Witteman HO, Van der Weijden T
BMJ. 2017 Nov 6;359:j4891. doi: 10.1136/bmj.j4891. Epub 2017 Nov 6.
PMID: 29109079

A Person-Centered, Registry-Based Learning Health System for Palliative Care: A Path to Coproducing Better Outcomes, Experience, Value, and Science.
Kamal AH, Kirkland KB, Meier DE, Morgan TS, Nelson EC, Pantilat SZ
J Palliat Med. 2018 Mar;21(S2):S61-S67. doi: 10.1089/jpm.2017.0354. Epub 2017 Nov 1.
PMID: 29091509

Online, Interactive Option Grid Patient Decision Aids and their Effect on User Preferences.
Scalia P, Durand MA, Kremer J, Faber M, Elwyn G
Med Decis Making. 2018 Jan;38(1):56-68. doi: 10.1177/0272989X17734538. Epub 2017 Oct 27.
PMID: 29078054

Right For Me: protocol for a cluster randomised trial of two interventions for facilitating shared decision-making about contraceptive methods.
Thompson R, Manski R, Donnelly KZ, Stevens G, Agusti D, Banach M, Boardman MB, Brady P, Colon Bradt C, Foster T, Johnson DJ, Li Z, Norsigian J, Nothnagle M, Olson AL, Shepherd HL, Stern LF, Tosteson TD, Trevena L, Upadhya KK, Elwyn G
BMJ Open. 2017 Oct 22;7(10):e017830. doi: 10.1136/bmjopen-2017-017830. Epub 2017 Oct 22.
PMID: 29061624

Using patient-reported outcome measurement to improve patient care.
Øvretveit J, Zubkoff L, Nelson EC, Frampton S, Knudsen JL, Zimlichman E
Int J Qual Health Care. 2017 Oct 1;29(6):874-879. doi: 10.1093/intqhc/mzx108.
PMID: 29025001

Patient-Centered Organizational Statements: Merely Rhetoric? A Survey of Health Care Leaders.
Nelson WA, Forcino RC, Elwyn G
Health Care Manag (Frederick). 2017 Oct/Dec;36(4):342-346. doi: 10.1097/HCM.0000000000000186.
PMID: 28953578

Domains associated with successful quality improvement in healthcare – a nationwide case study.
Brandrud AS, Nyen B, Hjortdahl P, Sandvik L, Helljesen Haldorsen GS, Bergli M, Nelson EC, Bretthauer M
BMC Health Serv Res. 2017 Sep 13;17(1):648. doi: 10.1186/s12913-017-2454-2. Epub 2017 Sep 13.
PMID: 28903723

Availability of patient decision aids for stroke prevention in atrial fibrillation: A systematic review.
O’Neill ES, Grande SW, Sherman A, Elwyn G, Coylewright M
Am Heart J. 2017 Sep;191:1-11. doi: 10.1016/j.ahj.2017.05.014. Epub 2017 Jun 3.
PMID: 28888264

Quantity over quality-Findings from a systematic review and environmental scan of patient decision aids on early abortion methods.
Donnelly KZ, Elwyn G, Thompson R
Health Expect. 2018 Feb;21(1):316-326. doi: 10.1111/hex.12617. Epub 2017 Sep 7.
PMID: 28881071

Serious Choices: A Protocol for an Environmental Scan of Patient Decision Aids for Seriously Ill People at Risk of Death Facing Choices about Life-Sustaining Treatments.
Saunders CH, Elwyn G, Kirkland K, Durand MA
Patient. 2018 Feb;11(1):97-106. doi: 10.1007/s40271-017-0268-2.
PMID: 28825182

“Provoking conversations”: case studies of organizations where Option Grid™ decision aids have become ‘normalized’.
Scalia P, Elwyn G, Durand MA
BMC Med Inform Decis Mak. 2017 Aug 18;17(1):124. doi: 10.1186/s12911-017-0517-2. Epub 2017 Aug 18.
PMID: 28821256

Patients’ views on the use of an Option Grid for knee osteoarthritis in physiotherapy clinical encounters: An interview study.
Kinsey K, Firth J, Elwyn G, Edwards A, Brain K, Marrin K, Nye A, Wood F
Health Expect. 2017 Dec;20(6):1302-1310. doi: 10.1111/hex.12570. Epub 2017 Aug 4.
PMID: 28779512

Shared Decision Making-The Importance of Diagnosing Preferences.
Elwyn G, Cochran N, Pignone M
JAMA Intern Med. 2017 Sep 1;177(9):1239-1240. doi: 10.1001/jamainternmed.2017.1923.
PMID: 28692733

Can Patients Make Recordings of Medical Encounters?: What Does the Law Say?
Elwyn G, Barr PJ, Castaldo M
JAMA. 2017 Aug 8;318(6):513-514. doi: 10.1001/jama.2017.7511.
PMID: 28692707

Sharing Annotated Audio Recordings of Clinic Visits With Patients-Development of the Open Recording Automated Logging System (ORALS): Study Protocol.
Barr PJ, Dannenberg MD, Ganoe CH, Haslett W, Faill R, Hassanpour S, Das A, Arend R, Masel MC, Piper S, Reicher H, Ryan J, Elwyn G
JMIR Res Protoc. 2017 Jul 6;6(7):e121. doi: 10.2196/resprot.7735. Epub 2017 Jul 6.
PMID: 28684387

Using CollaboRATE, a brief patient-reported measure of shared decision making: Results from three clinical settings in the United States.
Forcino RC, Barr PJ, O’Malley AJ, Arend R, Castaldo MG, Ozanne EM, Percac-Lima S, Stults CD, Tai-Seale M, Thompson R, Elwyn G
Health Expect. 2018 Feb;21(1):82-89. doi: 10.1111/hex.12588. Epub 2017 Jul 5.
PMID: 28678426

Assessing medical student knowledge and attitudes about shared decision making across the curriculum: protocol for an international online survey and stakeholder analysis.
Durand MA, Yen R, Barr PJ, Cochran N, Aarts J, Legare F, Reed M, James O’Malley A, Scalia P, Painchaud Guerard G, Elwyn G
BMJ Open. 2017 Jun 23;7(6):e015945. doi: 10.1136/bmjopen-2017-015945. Epub 2017 Jun 23.
PMID: 28645974

Shared decision making in 2017: International accomplishments in policy, research and implementation.
Harter M, Moumjid N, Cornuz J, Elwyn G, van der Weijden T
Z Evid Fortbild Qual Gesundhwes. 2017 Jun;123-124:1-5. doi: 10.1016/j.zefq.2017.05.024. Epub 2017 May 23.
PMID: 28546053

An evaluation of two interventions to enhance patient-physician communication using the observer OPTION(5) measure of shared decision making.
Dillon EC, Stults CD, Wilson C, Chuang J, Meehan A, Li M, Elwyn G, Frosch DL, Yu E, Tai-Seale M
Patient Educ Couns. 2017 Oct;100(10):1910-1917. doi: 10.1016/j.pec.2017.04.020. Epub 2017 May 1.
PMID: 28532861

Shared decision making as part of value based care: New U.S. policies challenge our readiness.
Spatz ES, Elwyn G, Moulton BW, Volk RJ, Frosch DL
Z Evid Fortbild Qual Gesundhwes. 2017 Jun;123-124:104-108. doi: 10.1016/j.zefq.2017.05.012. Epub 2017 May 20.
PMID: 28532630

Supporting Shared Decision-making for Children’s Complex Behavioral Problems: Development and User Testing of an Option Grid™ Decision Aid.
Barnett ER, Boucher EA, Daviss WB, Elwyn G
Community Ment Health J. 2018 Jan;54(1):7-16. doi: 10.1007/s10597-017-0136-5. Epub 2017 Apr 11.
PMID: 28401416

Evidence on the Validity of a Comprehensive Health Risk Index and Implications for Ambulatory Care and Population Health Management.
Massaro JM, Murabito JM, Au R, Carnahan E, Morgan TS, Murray C, Fisher ES, Nelson EC, Lim SS, DʼAgostino RB Sr
J Ambul Care Manage. 2017 Oct/Dec;40(4):297-304. doi: 10.1097/JAC.0000000000000177.
PMID: 28350635

Evaluating CollaboRATE in a clinical setting: analysis of mode effects on scores, response rates and costs of data collection.
Barr PJ, Forcino RC, Thompson R, Ozanne EM, Arend R, Castaldo MG, O’Malley AJ, Elwyn G
BMJ Open. 2017 Mar 24;7(3):e014681. doi: 10.1136/bmjopen-2016-014681. Epub 2017 Mar 24.
PMID: 28341691

Prioritizing Shared Decision Making.
Alper BS, Elwyn G, Price A
JAMA. 2017 Feb 28;317(8):856-857. doi: 10.1001/jama.2016.21135.
PMID: 28245314

Recognizing decision needs: first step for collaborative deliberation in dementia care networks.
Groen van de Ven L, Smits C, Elwyn G, Span M, Jukema J, Eefsting J, Vernooij-Dassen M
Patient Educ Couns. 2017 Jul;100(7):1329-1337. doi: 10.1016/j.pec.2017.01.024. Epub 2017 Feb 4.
PMID: 28238420

Fostering Collaboration Through Creation of an IBD Learning Health System.
Johnson LC, Melmed GY, Nelson EC, Holthoff MM, Weaver SA, Morgan TS, Siegel CA
Am J Gastroenterol. 2017 Mar;112(3):406-408. doi: 10.1038/ajg.2017.9. Epub 2017 Feb 14.
PMID: 28195179

Developing and Pilot Testing a Spanish Translation of CollaboRATE for Use in the United States.
Forcino RC, Bustamante N, Thompson R, Percac-Lima S, Elwyn G, Perez-Arechaederra D, Barr PJ
PLoS One. 2016;11(12):e0168538. doi: 10.1371/journal.pone.0168538. Epub 2016 Dec 21.
PMID: 28002422

Assessing the acceptability and feasibility of encounter decision aids for early stage breast cancer targeted at underserved patients.
Alam S, Elwyn G, Percac-Lima S, Grande S, Durand MA
BMC Med Inform Decis Mak. 2016 Nov 21;16(1):147. Epub 2016 Nov 21.
PMID: 27871271

On a learning curve for shared decision making: Interviews with clinicians using the knee osteoarthritis Option Grid.
Elwyn G, Rasmussen J, Kinsey K, Firth J, Marrin K, Edwards A, Wood F
J Eval Clin Pract. 2018 Feb;24(1):56-64. doi: 10.1111/jep.12665. Epub 2016 Nov 16.
PMID: 27860101

Creating a culture of health: evolving healthcare systems and patient engagement.
Lindblad S, Ernestam S, Van Citters AD, Lind C, Morgan TS, Nelson EC
QJM. 2017 Mar 1;110(3):125-129. doi: 10.1093/qjmed/hcw188.
PMID: 27803364

Working with interpreters: The challenges of introducing Option Grid patient decision aids.
Wood F, Phillips K, Edwards A, Elwyn G
Patient Educ Couns. 2017 Mar;100(3):456-464. doi: 10.1016/j.pec.2016.09.016. Epub 2016 Sep 22.
PMID: 27745941

Trustworthy patient decision aids: a qualitative analysis addressing the risk of competing interests.
Elwyn G, Dannenberg M, Blaine A, Poddar U, Durand MA
BMJ Open. 2016 Sep 9;6(9):e012562. doi: 10.1136/bmjopen-2016-012562. Epub 2016 Sep 9.
PMID: 27612542

A digital advocate? Reactions of rural people who experience homelessness to the idea of recording clinical encounters.
Grande SW, Castaldo MG, Carpenter-Song E, Griesemer I, Elwyn G
Health Expect. 2017 Aug;20(4):618-625. doi: 10.1111/hex.12492. Epub 2016 Sep 7.
PMID: 27604687

Development and evaluation of the “BRISK Scale,” a brief observational measure of risk communication competence.
Han PK, Joekes K, Mills G, Gutheil C, Smith K, Cochran NE, Elwyn G
Patient Educ Couns. 2016 Dec;99(12):2091-2094. doi: 10.1016/j.pec.2016.08.013. Epub 2016 Aug 12.
PMID: 27544016

Implementing shared decision-making: consider all the consequences.
Elwyn G, Frosch DL, Kobrin S
Implement Sci. 2016 Aug 8;11:114. doi: 10.1186/s13012-016-0480-9. Epub 2016 Aug 8.
PMID: 27502770

Shared decision-making as an existential journey: Aiming for restored autonomous capacity.
Gulbrandsen P, Clayman ML, Beach MC, Han PK, Boss EF, Ofstad EH, Elwyn G
Patient Educ Couns. 2016 Sep;99(9):1505-10. doi: 10.1016/j.pec.2016.07.014. Epub 2016 Jul 7.
PMID: 27460801

Health Care Delivery Practices in Huntington’s Disease Specialty Clinics: An International Survey.
Frich JC, Rae D, Roxburgh R, Miedzybrodzka ZH, Edmondson M, Pope EB, Goodman L, Haddad MS, Giuliano J, Nelson EC, Guttman M, Nance M
J Huntingtons Dis. 2016 Jun 27;5(2):207-13. doi: 10.3233/JHD-160192.
PMID: 27372053

Patient focused registries can improve health, care, and science.
Nelson EC, Dixon-Woods M, Batalden PB, Homa K, Van Citters AD, Morgan TS, Eftimovska E, Fisher ES, Ovretveit J, Harrison W, Lind C, Lindblad S
BMJ. 2016 Jul 1;354:i3319. doi: 10.1136/bmj.i3319. Epub 2016 Jul 1.
PMID: 27370543

Clinical encounters in the post-guidelines era.
Elwyn G, Wieringa S, Greenhalgh T
BMJ. 2016 Jun 27;353:i3200. doi: 10.1136/bmj.i3200. Epub 2016 Jun 27.
PMID: 27352795

Enhancing Shared Decision Making Through Carefully Designed Interventions That Target Patient And Provider Behavior.
Tai-Seale M, Elwyn G, Wilson CJ, Stults C, Dillon EC, Li M, Chuang J, Meehan A, Frosch DL
Health Aff (Millwood). 2016 Apr;35(4):605-12. doi: 10.1377/hlthaff.2015.1398.
PMID: 27044959

‘Much clearer with pictures’: using community-based participatory research to design and test a Picture Option Grid for underserved patients with breast cancer.
Durand MA, Alam S, Grande SW, Elwyn G
BMJ Open. 2016 Feb 2;6(2):e010008. doi: 10.1136/bmjopen-2015-010008. Epub 2016 Feb 2.
PMID: 26839014

Patient Decision Aids: A Case for Certification at the National Level in the United States.
Poddar U, Brownlee S, Stacey D, Volk RJ, Williams JW, Elwyn G
J Clin Ethics. 2015 Winter;26(4):306-11.
PMID: 26752384

Competing priorities in treatment decision-making: a US national survey of individuals with depression and clinicians who treat depression.
Barr PJ, Forcino RC, Mishra M, Blitzer R, Elwyn G
BMJ Open. 2016 Jan 8;6(1):e009585. doi: 10.1136/bmjopen-2015-009585. Epub 2016 Jan 8.
PMID: 26747036

Supporting shared decision making using an Option Grid for osteoarthritis of the knee in an interface musculoskeletal clinic: A stepped wedge trial.
Elwyn G, Pickles T, Edwards A, Kinsey K, Brain K, Newcombe RG, Firth J, Marrin K, Nye A, Wood F
Patient Educ Couns. 2016 Apr;99(4):571-577. doi: 10.1016/j.pec.2015.10.011. Epub 2015 Oct 30.
PMID: 26566194

In Absentia: An Exploratory Study of How Patients Are Considered in Multidisciplinary Cancer Team Meetings.
Hahlweg P, Hoffmann J, Harter M, Frosch DL, Elwyn G, Scholl I
PLoS One. 2015;10(10):e0139921. doi: 10.1371/journal.pone.0139921. Epub 2015 Oct 6.
PMID: 26441328

Validation of a new predictive risk model: measuring the impact of the major modifiable risks of death for patients and populations.
Lim SS, Carnahan E, Nelson EC, Gillespie CW, Mokdad AH, Murray CJ, Fisher ES
Popul Health Metr. 2015;13:27. doi: 10.1186/s12963-015-0059-8. Epub 2015 Oct 1.
PMID: 26435702

Trustworthy guidelines – excellent; customized care tools – even better.
Elwyn G, Quinlan C, Mulley A, Agoritsas T, Vandvik PO, Guyatt G
BMC Med. 2015 Sep 1;13:199. doi: 10.1186/s12916-015-0436-y. Epub 2015 Sep 1.
PMID: 26324120

Using Option Grids: steps toward shared decision-making for neonatal circumcision.
Fay M, Grande SW, Donnelly K, Elwyn G
Patient Educ Couns. 2016 Feb;99(2):236-42. doi: 10.1016/j.pec.2015.08.025. Epub 2015 Aug 24.
PMID: 26324111

Sharing decisions during diagnostic consultations; an observational study in pediatric oncology.
Wiering BM, Noordman J, Tates K, Zwaanswijk M, Elwyn G, De Bont ES, Beishuizen A, Hoogerbrugge PM, Van Dulmen S
Patient Educ Couns. 2016 Jan;99(1):61-7. doi: 10.1016/j.pec.2015.07.026. Epub 2015 Jul 29.
PMID: 26298218

Patients recording clinical encounters: a path to empowerment? Assessment by mixed methods.
Elwyn G, Barr PJ, Grande SW
BMJ Open. 2015 Aug 11;5(8):e008566. doi: 10.1136/bmjopen-2015-008566. Epub 2015 Aug 11.
PMID: 26264274

Incentivizing shared decision making in the USA–where are we now?
Durand MA, Barr PJ, Walsh T, Elwyn G
Healthc (Amst). 2015 Jun;3(2):97-101. doi: 10.1016/j.hjdsi.2014.10.008. Epub 2014 Nov 21.
PMID: 26179730

Conceptualising patient empowerment: a mixed methods study.
Bravo P, Edwards A, Barr PJ, Scholl I, Elwyn G, McAllister M, Cochrane Healthcare Quality Research Group, Cardiff University
BMC Health Serv Res. 2015 Jul 1;15:252. doi: 10.1186/s12913-015-0907-z. Epub 2015 Jul 1.
PMID: 26126998

Development and Validation of the CPO Scale, a New Instrument for Evaluation of Health Care Improvement Efforts.
Brandrud AS, Haldorsen GS, Nyen B, Vardal M, Nelson EC, Sandvik L, Hjortdahl P
Qual Manag Health Care. 2015 Jul-Sep;24(3):109-20. doi: 10.1097/QMH.0000000000000065.
PMID: 26115058

Measurement challenges in shared decision making: putting the ‘patient’ in patient-reported measures.
Barr PJ, Elwyn G
Health Expect. 2016 Oct;19(5):993-1001. doi: 10.1111/hex.12380. Epub 2015 Jun 25.
PMID: 26111552

Dealing with encounters being recorded by patients.
Main B, Elwyn G
Br J Hosp Med (Lond). 2015 Jun;76(6):C86-8. doi: 10.12968/hmed.2015.76.6.C86.
PMID: 26053917

Developing IntegRATE: a fast and frugal patient-reported measure of integration in health care delivery.
Elwyn G, Thompson R, John R, Grande SW
Int J Integr Care. 2015 Jan-Mar;15:e008. Epub 2015 Mar 27.
PMID: 26034467

Assessment of patient empowerment–a systematic review of measures.
Barr PJ, Scholl I, Bravo P, Faber MJ, Elwyn G, McAllister M
PLoS One. 2015;10(5):e0126553. doi: 10.1371/journal.pone.0126553. Epub 2015 May 13.
PMID: 25970618

The psychometric properties of Observer OPTION(5), an observer measure of shared decision making.
Barr PJ, O’Malley AJ, Tsulukidze M, Gionfriddo MR, Montori V, Elwyn G
Patient Educ Couns. 2015 Aug;98(8):970-6. doi: 10.1016/j.pec.2015.04.010. Epub 2015 Apr 29.
PMID: 25956069

Patients covertly recording clinical encounters: threat or opportunity? A qualitative analysis of online texts.
Tsulukidze M, Grande SW, Thompson R, Rudd K, Elwyn G
PLoS One. 2015;10(5):e0125824. doi: 10.1371/journal.pone.0125824. Epub 2015 May 1.
PMID: 25933002

Can shared decision-making reduce medical malpractice litigation? A systematic review.
Durand MA, Moulton B, Cockle E, Mann M, Elwyn G
BMC Health Serv Res. 2015 Apr 18;15:167. doi: 10.1186/s12913-015-0823-2. Epub 2015 Apr 18.
PMID: 25927953

Measuring organisational readiness for patient engagement (MORE): an international online Delphi consensus study.
Oostendorp LJ, Durand MA, Lloyd A, Elwyn G
BMC Health Serv Res. 2015 Feb 14;15:61. doi: 10.1186/s12913-015-0717-3. Epub 2015 Feb 14.
PMID: 25879457

Shared decision-making in epilepsy management.
Pickrell WO, Elwyn G, Smith PE
Epilepsy Behav. 2015 Jun;47:78-82. doi: 10.1016/j.yebeh.2015.01.033. Epub 2015 Apr 8.
PMID: 25862468

Elements of informed consent and decision quality were poorly correlated in informed consent documents.
Brehaut JC, Carroll K, Elwyn G, Saginur R, Kimmelman J, Shojania K, Syrowatka A, Nguyen T, Fergusson D
J Clin Epidemiol. 2015 Dec;68(12):1472-80. doi: 10.1016/j.jclinepi.2015.03.002. Epub 2015 Mar 7.
PMID: 25857675

Using patient-reported outcomes in routine practice: three novel use cases and implications.
Forsberg HH, Nelson EC, Reid R, Grossman D, Mastanduno MP, Weiss LT, Fisher ES, Weinstein JN
J Ambul Care Manage. 2015 Apr-Jun;38(2):188-95. doi: 10.1097/JAC.0000000000000052.
PMID: 25748267

Patient reported outcome measures in practice.
Nelson EC, Eftimovska E, Lind C, Hager A, Wasson JH, Lindblad S
BMJ. 2015 Feb 10;350:g7818. doi: 10.1136/bmj.g7818. Epub 2015 Feb 10.
PMID: 25670183

Decision aids that really promote shared decision making: the pace quickens.
Agoritsas T, Heen AF, Brandt L, Alonso-Coello P, Kristiansen A, Akl EA, Neumann I, Tikkinen KA, Weijden Tv, Elwyn G, Montori VM, Guyatt GH, Vandvik PO
BMJ. 2015 Feb 10;350:g7624. doi: 10.1136/bmj.g7624. Epub 2015 Feb 10.
PMID: 25670178

Correction: the psychometric properties of CollaboRATE: a fast and frugal patient-reported measure of the shared decision-making process.
Barr PJ, Thompson R, Walsh T, Grande SW, Ozanne EM, Elwyn G
J Med Internet Res. 2015 Feb 6;17(2):e32. doi: 10.2196/jmir.4272. Epub 2015 Feb 6.
PMID: 25667387

Minimum standards for the certification of patient decision support interventions: feasibility and application.
Durand MA, Witt J, Joseph-Williams N, Newcombe RG, Politi MC, Sivell S, Elwyn G
Patient Educ Couns. 2015 Apr;98(4):462-8. doi: 10.1016/j.pec.2014.12.009. Epub 2014 Dec 31.
PMID: 25577469

Mollie’s story: a case and a place that exemplify person-centered care.
Nelson EC, Lazar J
J Ambul Care Manage. 2015 Jan-Mar;38(1):87-90. doi: 10.1097/JAC.0000000000000053.
PMID: 25469582

The SPORT value compass: do the extra costs of undergoing spine surgery produce better health benefits?
Weinstein JN, Tosteson AN, Tosteson TD, Lurie JD, Abdu WA, Mirza SK, Zhao W, Morgan TS, Nelson EC
Med Care. 2014 Dec;52(12):1055-63. doi: 10.1097/MLR.0000000000000250.
PMID: 25334052

Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube.
Naslund JA, Grande SW, Aschbrenner KA, Elwyn G
PLoS One. 2014;9(10):e110171. doi: 10.1371/journal.pone.0110171. Epub 2014 Oct 15.
PMID: 25333470

Few ACOs pursue innovative models that integrate care for mental illness and substance abuse with primary care.
Lewis VA, Colla CH, Tierney K, Van Citters AD, Fisher ES, Meara E
Health Aff (Millwood). 2014 Oct;33(10):1808-16. doi: 10.1377/hlthaff.2014.0353.
PMID: 25288427

Higher integrity health care: evidence-based shared decision making.
Elwyn G, Fisher E
Circ Cardiovasc Qual Outcomes. 2014 Nov;7(6):975-80. doi: 10.1161/CIRCOUTCOMES.114.000688. Epub 2014 Sep 30.
PMID: 25271048

Doctors’ perspectives of informed consent for non-emergency surgical procedures: a qualitative interview study.
Wood F, Martin SM, Carson-Stevens A, Elwyn G, Precious E, Kinnersley P
Health Expect. 2016 Jun;19(3):751-61. doi: 10.1111/hex.12258. Epub 2014 Sep 12.
PMID: 25212709

Collaborative deliberation: a model for patient care.
Elwyn G, Lloyd A, May C, van der Weijden T, Stiggelbout A, Edwards A, Frosch DL, Rapley T, Barr P, Walsh T, Grande SW, Montori V, Epstein R
Patient Educ Couns. 2014 Nov;97(2):158-64. doi: 10.1016/j.pec.2014.07.027. Epub 2014 Aug 13.
PMID: 25175366

Power imbalance prevents shared decision making.
Joseph-Williams N, Edwards A, Elwyn G
BMJ. 2014 May 14;348:g3178. doi: 10.1136/bmj.g3178. Epub 2014 May 14.
PMID: 25134115

Adapting the coping in deliberation (CODE) framework: a multi-method approach in the context of familial ovarian cancer risk management.
Witt J, Elwyn G, Wood F, Rogers MT, Menon U, Brain K
Patient Educ Couns. 2014 Nov;97(2):200-10. doi: 10.1016/j.pec.2014.07.004. Epub 2014 Jul 14.
PMID: 25064250

Self-care: the new principal care.
Nelson EC, Meyer G, Bohmer R
J Ambul Care Manage. 2014 Jul-Sep;37(3):219-25. doi: 10.1097/JAC.0000000000000036.
PMID: 24887523

Shared decision making for treatment of cancer: challenges and opportunities.
Katz SJ, Belkora J, Elwyn G
J Oncol Pract. 2014 May;10(3):206-8. doi: 10.1200/JOP.2014.001434.
PMID: 24839284

Shared decision making and motivational interviewing: achieving patient-centered care across the spectrum of health care problems.
Elwyn G, Dehlendorf C, Epstein RM, Marrin K, White J, Frosch DL
Ann Fam Med. 2014 May-Jun;12(3):270-5. doi: 10.1370/afm.1615.
PMID: 24821899

Exploring consumer values of comparative performance information for hospital choice.
Ketelaar NA, Faber MJ, Westert GP, Elwyn G, Braspenning JC
Qual Prim Care. 2014;22(2):81-9.
PMID: 24762317

Do interventions designed to support shared decision-making reduce health inequalities? A systematic review and meta-analysis.
Durand MA, Carpenter L, Dolan H, Bravo P, Mann M, Bunn F, Elwyn G
PLoS One. 2014;9(4):e94670. doi: 10.1371/journal.pone.0094670. Epub 2014 Apr 15.
PMID: 24736389

Measuring Adverse Events in Hospitalized Patients: An Administrative Method for Measuring Harm.
Martin J, Benjamin EM, Craver C, Kroch EA, Nelson EC, Bankowitz R
J Patient Saf. 2016 Sep;12(3):125-31. doi: 10.1097/PTS.0000000000000070.
PMID: 24717528

Providing recording of clinical consultation to patients – a highly valued but underutilized intervention: a scoping review.
Tsulukidze M, Durand MA, Barr PJ, Mead T, Elwyn G
Patient Educ Couns. 2014 Jun;95(3):297-304. doi: 10.1016/j.pec.2014.02.007. Epub 2014 Mar 3.
PMID: 24630697

“Patientgate”–digital recordings change everything.
Elwyn G
BMJ. 2014 Mar 11;348:g2078. doi: 10.1136/bmj.g2078. Epub 2014 Mar 11.
PMID: 24620357

A classification model of patient engagement methods and assessment of their feasibility in real-world settings.
Grande SW, Faber MJ, Durand MA, Thompson R, Elwyn G
Patient Educ Couns. 2014 May;95(2):281-7. doi: 10.1016/j.pec.2014.01.016. Epub 2014 Feb 5.
PMID: 24582473

Undetermined impact of patient decision support interventions on healthcare costs and savings: systematic review.
Walsh T, Barr PJ, Thompson R, Ozanne E, O’Neill C, Elwyn G
BMJ. 2014 Jan 23;348:g188. doi: 10.1136/bmj.g188. Epub 2014 Jan 23.
PMID: 24458654

The psychometric properties of CollaboRATE: a fast and frugal patient-reported measure of the shared decision-making process.
Barr PJ, Thompson R, Walsh T, Grande SW, Ozanne EM, Elwyn G
J Med Internet Res. 2014 Jan 3;16(1):e2. doi: 10.2196/jmir.3085. Epub 2014 Jan 3.
PMID: 24389354

Technology identity: the role of sociotechnical representations in the adoption of medical devices.
Ulucanlar S, Faulkner A, Peirce S, Elwyn G
Soc Sci Med. 2013 Dec;98:95-105. doi: 10.1016/j.socscimed.2013.09.008. Epub 2013 Sep 18.
PMID: 24331887

Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making.
Joseph-Williams N, Elwyn G, Edwards A
Patient Educ Couns. 2014 Mar;94(3):291-309. doi: 10.1016/j.pec.2013.10.031. Epub 2013 Nov 9.
PMID: 24305642

Mobility, mood and site of care impact health related quality of life in Parkinson’s disease.
Nutt JG, Siderowf AD, Guttman M, Schmidt PN, Zamudio JI, Wu SS, Okun MS, Simuni T, Parashos SA, Dahodwala NA, Davis TL, Giladi N, Gurevich T, Hauser RA, Jankovic J, Lyons KE, Marsh L, Miyasaki JM, Morgan JC, Santiago AJ, Tarsy D, Mari Z, Malaty IA, Nelson EC, National Parkinson Foundation Quality Improvement Initiative Investigators
Parkinsonism Relat Disord. 2014 Mar;20(3):274-9. doi: 10.1016/j.parkreldis.2013.10.004. Epub 2013 Oct 16.
PMID: 24182524

Development and evaluation of a risk communication curriculum for medical students.
Han PK, Joekes K, Elwyn G, Mazor KM, Thomson R, Sedgwick P, Ibison J, Wong JB
Patient Educ Couns. 2014 Jan;94(1):43-9. doi: 10.1016/j.pec.2013.09.009. Epub 2013 Sep 19.
PMID: 24128795

Using a ‘talk’ model of shared decision making to propose an observation-based measure: Observer OPTION 5 Item.
Elwyn G, Tsulukidze M, Edwards A, Legare F, Newcombe R
Patient Educ Couns. 2013 Nov;93(2):265-71. doi: 10.1016/j.pec.2013.08.005. Epub 2013 Aug 27.
PMID: 24029581

Physicians as part of the solution? Community-based participatory research as a way to get shared decision making into practice.
Grande SW, Durand MA, Fisher ES, Elwyn G
J Gen Intern Med. 2014 Jan;29(1):219-22. doi: 10.1007/s11606-013-2602-2. Epub 2013 Sep 4.
PMID: 24002635

Toward Minimum Standards for Certifying Patient Decision Aids: A Modified Delphi Consensus Process.
Joseph-Williams N, Newcombe R, Politi M, Durand MA, Sivell S, Stacey D, O’Connor A, Volk RJ, Edwards A, Bennett C, Pignone M, Thomson R, Elwyn G
Med Decis Making. 2014 Aug;34(6):699-710. doi: 10.1177/0272989X13501721. Epub 2013 Aug 20.
PMID: 23963501

Coaching interprofessional health care improvement teams: the coachee, the coach and the leader perspectives.
Godfrey MM, Andersson-Gare B, Nelson EC, Nilsson M, Ahlstrom G
J Nurs Manag. 2014 May;22(4):452-64. doi: 10.1111/jonm.12068. Epub 2013 Jun 20.
PMID: 23782339

Developing CollaboRATE: a fast and frugal patient-reported measure of shared decision making in clinical encounters.
Elwyn G, Barr PJ, Grande SW, Thompson R, Walsh T, Ozanne EM
Patient Educ Couns. 2013 Oct;93(1):102-7. doi: 10.1016/j.pec.2013.05.009. Epub 2013 Jun 12.
PMID: 23768763

Development and validation of a cystic fibrosis patient and family member experience of care survey.
Homa K, Sabadosa KA, Nelson EC, Rogers WH, Marshall BC
Qual Manag Health Care. 2013 Apr-Jun;22(2):100-16. doi: 10.1097/QMH.0b013e31828bc3bc.
PMID: 23542365

Assessments of the extent to which health-care providers involve patients in decision making: a systematic review of studies using the OPTION instrument.
Couet N, Desroches S, Robitaille H, Vaillancourt H, Leblanc A, Turcotte S, Elwyn G, Legare F
Health Expect. 2015 Aug;18(4):542-61. doi: 10.1111/hex.12054. Epub 2013 Mar 4.
PMID: 23451939

Stop the silent misdiagnosis: patients’ preferences matter.
Mulley AG, Trimble C, Elwyn G
BMJ. 2012 Nov 8;345:e6572. doi: 10.1136/bmj.e6572. Epub 2012 Nov 8.
PMID: 23137819

Insights from transformations under way at four Brookings-Dartmouth accountable care organization pilot sites.
Larson BK, Van Citters AD, Kreindler SA, Carluzzo KL, Gbemudu JN, Wu FM, Nelson EC, Shortell SM, Fisher ES
Health Aff (Millwood). 2012 Nov;31(11):2395-406. doi: 10.1377/hlthaff.2011.1219.
PMID: 23129669

A framework for evaluating the formation, implementation, and performance of accountable care organizations.
Fisher ES, Shortell SM, Kreindler SA, Van Citters AD, Larson BK
Health Aff (Millwood). 2012 Nov;31(11):2368-78. doi: 10.1377/hlthaff.2012.0544.
PMID: 23129666

More quality measures versus measuring what matters: a call for balance and parsimony.
Meyer GS, Nelson EC, Pryor DB, James B, Swensen SJ, Kaplan GS, Weissberg JI, Bisognano M, Yates GR, Hunt GC
BMJ Qual Saf. 2012 Nov;21(11):964-8. doi: 10.1136/bmjqs-2012-001081. Epub 2012 Aug 14.
PMID: 22893696

The medium is the (health) measure: patient engagement using personal technologies.
Wasson JH, Forsberg HH, Lindblad S, Mazowita G, McQuillen K, Nelson EC
J Ambul Care Manage. 2012 Apr-Jun;35(2):109-17. doi: 10.1097/JAC.0b013e31824a235e.
PMID: 22415284

How do centres begin the process to prevent contrast-induced acute kidney injury: a report from a new regional collaborative.
Brown JR, McCullough PA, Splaine ME, Davies L, Ross CS, Dauerman HL, Robb JF, Boss R, Goldberg DJ, Fedele FA, Kellett MA, Phillips WJ, Ver Lee PN, Nelson EC, MacKenzie TA, O’Connor GT, Sarnak MJ, Malenka DJ, Northern New England Cardiovascular Disease Study Group
BMJ Qual Saf. 2012 Jan;21(1):54-62. doi: 10.1136/bmjqs-2011-000041. Epub 2011 Sep 2.
PMID: 21890755

Automated detection of harm in healthcare with information technology: a systematic review.
Govindan M, Van Citters AD, Nelson EC, Kelly-Cummings J, Suresh G
Qual Saf Health Care. 2010 Oct;19(5):e11. doi: 10.1136/qshc.2009.033027. Epub 2010 Jul 29.
PMID: 20671081

A pilot evaluation of the In SHAPE individualized health promotion intervention for adults with mental illness.
Van Citters AD, Pratt SI, Jue K, Williams G, Miller PT, Xie H, Bartels SJ
Community Ment Health J. 2010 Dec;46(6):540-52. doi: 10.1007/s10597-009-9272-x. Epub 2009 Dec 10.
PMID: 20012197

Clinical microsystems, Part 3. Transformation of two hospitals using microsystem, mesosystem, and macrosystem strategies.
Godfrey MM, Melin CN, Muething SE, Batalden PB, Nelson EC
Jt Comm J Qual Patient Saf. 2008 Oct;34(10):591-603.
PMID: 18947119

Preferences of older and younger adults with serious mental illness for involvement in decision-making in medical and psychiatric settings.
O’Neal EL, Adams JR, McHugo GJ, Van Citters AD, Drake RE, Bartels SJ
Am J Geriatr Psychiatry. 2008 Oct;16(10):826-33. doi: 10.1097/JGP.0b013e318181f992.
PMID: 18827229

Clinical microsystems, part 2. Learning from micro practices about providing patients the care they want and need.
Wasson JH, Anders SG, Moore LG, Ho L, Nelson EC, Godfrey MM, Batalden PB
Jt Comm J Qual Patient Saf. 2008 Aug;34(8):445-52.
PMID: 18714745

Clinical microsystems, part 1. The building blocks of health systems.
Nelson EC, Godfrey MM, Batalden PB, Berry SA, Bothe AE Jr, McKinley KE, Melin CN, Muething SE, Moore LG, Wasson JH, Nolan TW
Jt Comm J Qual Patient Saf. 2008 Jul;34(7):367-78.
PMID: 18677868

Learning what matters for patients: qualitative evaluation of a health promotion program for those with serious mental illness.
Shiner B, Whitley R, Van Citters AD, Pratt SI, Bartels SJ
Health Promot Int. 2008 Sep;23(3):275-82. doi: 10.1093/heapro/dan018. Epub 2008 Jun 13.
PMID: 18552363

Using a hypothetical scenario to inform psychiatric advance directives.
Van Citters AD, Naidoo U, Foti ME
Psychiatr Serv. 2007 Nov;58(11):1467-71.
PMID: 17978258

Using a Malcolm Baldrige framework to understand high-performing clinical microsystems.
Foster TC, Johnson JK, Nelson EC, Batalden PB
Qual Saf Health Care. 2007 Oct;16(5):334-41.
PMID: 17913773

Evidence-based review of pharmacologic and nonpharmacologic treatments for older adults with schizophrenia.
Van Citters AD, Pratt SI, Bartels SJ, Jeste DV
Psychiatr Clin North Am. 2005 Dec;28(4):913-39, ix.
PMID: 16325735

Improving mental health assessment and service planning practices for older adults: a controlled comparison study.
Bartels SJ, Miles KM, Van Citters AD, Forester BP, Cohen MJ, Xie H
Ment Health Serv Res. 2005 Dec;7(4):213-23.
PMID: 16320104

Publicly reporting comprehensive quality and cost data: a health care system’s transparency initiative.
Nelson EC, Homa K, Mastanduno MP, Fisher ES, Batalden PB, Malcolm EF, Foster TC, Likosky DS, Guth JA, Gardent PB
Jt Comm J Qual Patient Saf. 2005 Oct;31(10):573-84.
PMID: 16294670

A systematic review of the effectiveness of community-based mental health outreach services for older adults.
Van Citters AD, Bartels SJ
Psychiatr Serv. 2004 Nov;55(11):1237-49.
PMID: 15534012

How many patients are needed to provide reliable evaluations of individual clinicians?
Nelson EC, Gentry MA, Mook KH, Spritzer KL, Higgins JH, Hays RD
Med Care. 2004 Mar;42(3):259-66.
PMID: 15076825

Good measurement for good improvement work.
Nelson EC, Splaine ME, Plume SK, Batalden P
Qual Manag Health Care. 2004 Jan-Mar;13(1):1-16.
PMID: 14976903

Microsystems in health care: Part 9. Developing small clinical units to attain peak performance.
Batalden PB, Nelson EC, Edwards WH, Godfrey MM, Mohr JJ
Jt Comm J Qual Saf. 2003 Nov;29(11):575-85.
PMID: 14619350

Microsystems in health care: Part 8. Developing people and improving work life: what front-line staff told us.
Huber TP, Godfrey MM, Nelson EC, Mohr JJ, Campbell C, Batalden PB
Jt Comm J Qual Saf. 2003 Oct;29(10):512-22.
PMID: 14567260

Microsystems in health care: Part 5. How leaders are leading.
Batalden PB, Nelson EC, Mohr JJ, Godfrey MM, Huber TP, Kosnik L, Ashling K
Jt Comm J Qual Saf. 2003 Jun;29(6):297-308.
PMID: 14564748

Microsystems in health care: Part 4. Planning patient-centered care.
Wasson JH, Godfrey MM, Nelson EC, Mohr JJ, Batalden PB
Jt Comm J Qual Saf. 2003 May;29(5):227-37.
PMID: 12751303

Microsystems in health care: Part 3. Planning patient-centered services.
Godfrey MM, Nelson EC, Wasson JH, Mohr JJ, Batalden PB
Jt Comm J Qual Saf. 2003 Apr;29(4):159-70.
PMID: 12698806

Microsystems in health care: Part 2. Creating a rich information environment.
Nelson EC, Batalden PB, Homa K, Godfrey MM, Campbell C, Headrick LA, Huber TP, Mohr JJ, Wasson JH
Jt Comm J Qual Saf. 2003 Jan;29(1):5-15.
PMID: 12528569

Microsystems in health care: Part 1. Learning from high-performing front-line clinical units.
Nelson EC, Batalden PB, Huber TP, Mohr JJ, Godfrey MM, Headrick LA, Wasson JH
Jt Comm J Qual Improv. 2002 Sep;28(9):472-93.
PMID: 12216343

Promoting quality improvement research.
Frank JE, Kim TM, Nelson EC
Jt Comm J Qual Improv. 2002 Aug;28(8):451-2, 417.
PMID: 12174409

Using data to improve medical practice by measuring processes and outcomes of care.
Nelson EC, Splaine ME, Godfrey MM, Kahn V, Hess A, Batalden P, Plume SK
Jt Comm J Qual Improv. 2000 Dec;26(12):667-85.
PMID: 11143207

Routine, single-item screening to identify abusive relationships in women.
Wasson JH, Jette AM, Anderson J, Johnson DJ, Nelson EC, Kilo CM
J Fam Pract. 2000 Nov;49(11):1017-22.
PMID: 11093568

Application of quality improvement to surgical practice.
Hamby LS, Colacchio TA, Nelson EC
Surgery. 2000 Nov;128(5):836-44.
PMID: 11056449

A randomized trial of the use of patient self-assessment data to improve community practices.
Wasson JH, Stukel TA, Weiss JE, Hays RD, Jette AM, Nelson EC
Eff Clin Pract. 1999 Jan-Feb;2(1):1-10.
PMID: 10346547

Neonatal intensive care: satisfaction measured from a parent’s perspective.
Conner JM, Nelson EC
Pediatrics. 1999 Jan;103(1 Suppl E):336-49.
PMID: 9917476

A longitudinal study of hospitalization rates for patients with chronic disease: results from the Medical Outcomes Study.
Nelson EC, McHorney CA, Manning WG Jr, Rogers WH, Zubkoff M, Greenfield S, Ware JE Jr, Tarlov AR
Health Serv Res. 1998 Feb;32(6):759-74.
PMID: 9460485

Continually improving the health and value of health care for a population of patients: the panel management process.
Batalden PB, Mohr JJ, Nelson EC, Plume SK, Baker GR, Wasson JH, Stoltz PK, Splaine ME, Wisniewski JJ
Qual Manag Health Care. 1997 Spring;5(3):41-51.
PMID: 10168371

A replicable and customizable approach to improve ambulatory care and research.
Wasson JH, Jette AM, Johnson DJ, Mohr JJ, Nelson EC
J Ambul Care Manage. 1997 Jan;20(1):17-27.
PMID: 10164030

Improving health care, Part 4: Concepts for improving any clinical process.
Batalden PB, Mohr JJ, Nelson EC, Plume SK
Jt Comm J Qual Improv. 1996 Oct;22(10):651-9.
PMID: 8923165

Improving health care, Part 3: Clinical benchmarking for best patient care.
Mohr JJ, Mahoney CC, Nelson EC, Batalden PB, Plume SK
Jt Comm J Qual Improv. 1996 Sep;22(9):599-616.
PMID: 8904689

Using qualitative and quantitative patient satisfaction data to improve the quality of cardiac care.
Niles N, Tarbox G, Schults W, Swartz W, Wolf E, Robb J, Plume S, Nelson EC, Nugent W
Jt Comm J Qual Improv. 1996 May;22(5):323-35.
PMID: 8724687

Comparing outcomes and charges for patients with acute myocardial infarction in three community hospitals: an approach for assessing “value”.
Nelson EC, Greenfield S, Hays RD, Larson C, Leopold B, Batalden PB
Int J Qual Health Care. 1995 Jun;7(2):95-108.
PMID: 7655815

Adolescent health and social problems. A method for detection and early management. The Dartmouth Primary Care Cooperative Information Project (COOP).
Wasson JH, Kairys SW, Nelson EC, Kalishman N, Baribeau P, Wasson E
Arch Fam Med. 1995 Jan;4(1):51-6.
PMID: 7812477

Increasing the value of cardiac care: the Dartmouth approach.
Nugent WC, Niles NW 2nd, Schults W, Plume SK, Wolf BH, Tarbox GH, Robb JF, Nelson EC
Qual Lett Healthc Lead. 1994 Jul-Aug;6(6):53-7.
PMID: 10136747

Leading clinical quality improvement. Using patient-based information to rapidly redesign care.
Nelson EC, Wasson JH
Healthc Forum J. 1994 Jul-Aug;37(4):25-9.
PMID: 10134892

Do patients’ health status reports predict future hospital stays for patients with an acute myocardial infarction?
Nelson EC, Ferreira PL, Cleary PD, Gustafson D, Wasson JH
Fam Pract Res J. 1994 Jun;14(2):119-26.
PMID: 8053377

A short survey for assessing health and social problems of adolescents. Dartmouth Primary Care Cooperative Information Project (The COOP).
Wasson JH, Kairys SW, Nelson EC, Kalishman N, Baribeau P
J Fam Pract. 1994 May;38(5):489-94.
PMID: 8176348

Patient-based quality measurement systems.
Nelson EC, Batalden PB
Qual Manag Health Care. 1993 Fall;2(1):18-30.
PMID: 10131017

Patients’ good and bad surprises: how do they relate to overall patient satisfaction?
Nelson EC, Larson C
QRB Qual Rev Bull. 1993 Mar;19(3):89-94.
PMID: 8488044

Do patient perceptions of quality relate to hospital financial performance?
Nelson EC, Rust RT, Zahorik A, Rose RL, Batalden P, Siemanski BA
J Health Care Mark. 1992 Dec;12(4):6-13.
PMID: 10123586

The physician and employee judgment system: reliability and validity of a hospital quality measurement method.
Nelson EC, Larson CO, Hays RD, Nelson SA, Ward D, Batalden PB
QRB Qual Rev Bull. 1992 Sep;18(9):284-92.
PMID: 1437092

A health promotion program: Staying Healthy After Fifty.
Simmons JJ, Nelson EC, Roberts E, Salisbury ZT, Kane-Williams E, Benson L
Health Educ Q. 1989 Winter;16(4):461-72.
PMID: 2695503

Evaluation of the Staying Healthy After Fifty educational program: impact on course participants.
Benson L, Nelson EC, Napps SE, Roberts E, Kane-Williams E, Salisbury ZT
Health Educ Q. 1989 Winter;16(4):485-508.
PMID: 2621108

Do primary physicians actually manage their patients’ fee-for-service care?
Dietrich AJ, Nelson EC, Kirk JW, Zubkoff M, O’Connor GT
JAMA. 1988 Jun 3;259(21):3145-9.
PMID: 3367491

Effectiveness of physician antismoking advice.
Conger B, Nelson EC, Dietrich AJ, Blanchard C, McHugo GJ, Simmons JJ, Vernon P, Secker-Walker R, Wasson JH
Am J Prev Med. 1987 Jul-Aug;3(4):223-6.
PMID: 3330661

Chief complaint fatigue: a longitudinal study from the patient’s perspective.
Nelson E, Kirk J, McHugo G, Douglass R, Ohler J, Wasson J, Zubkoff M
Fam Pract Res J. 1987 Summer;6(4):175-88.
PMID: 3455125