Publications

Review literature about learning health systems, coproduction, and other related research published by our team.

Most Recent 200 Publications of Lab Members – Updated on August 09, 2024

Shared decision-making and disease management in advanced cancer and chronic kidney disease using patient-reported outcome dashboards.
Cella D, Kuharic M, Peipert JD, Bedjeti K, Garcia SF, Yanez B, Hirschhorn LR, Coughlin A, Morken V, O’Connor M, Linder JA, Jordan N, Ackermann RT, Amagai S, Kircher S, Mohindra N, Aggarwal V, Weitzel M, Nelson EC, Elwyn G, Van Citters AD, Barnard C
J Am Med Inform Assoc. 2024 Aug 2; pii: ocae180. doi: 10.1093/jamia/ocae180. Epub 2024 Aug 2.
PMID: 39093939

Implementation of a Co-Design Strategy to Develop a Dashboard to Support Shared Decision Making in Advanced Cancer and Chronic Kidney Disease.
Morken V, Perry LM, Coughlin A, O’Connor M, Chmiel R, Xinos S, Peipert JD, Garcia SF, Linder JA, Ackermann RT, Kircher S, Mohindra NA, Aggarwal V, Weitzel M, Nelson EC, Elwyn G, Van Citters AD, Barnard C, Cella D, Hirschhorn LR
J Clin Med. 2024 Jul 17;13(14) doi: 10.3390/jcm13144178. Epub 2024 Jul 17.
PMID: 39064218

Wellness in the modulator era: An observational study of the impact of CFTR modulator therapy on the well-being of people with cystic fibrosis.
Van Citters AD, Aliaj E, Alvarez JA, Brown CD, Cary J, Cravens R, Frederick CA, Georgiopoulos AM, Goss CH, Kazmerski TM, King JR, Lawrence M, Lovell C, Roman C, Tillman L, Yu E
J Cyst Fibros. 2024 Jul 25; pii: S1569-1993(24)00779-3. doi: 10.1016/j.jcf.2024.06.010. Epub 2024 Jul 25.
PMID: 39060182

Improving Parkinson’s Disease Care through Systematic Screening for Depression.
Marras C, Meyer Z, Liu H, Luo S, Mantri S, Allen A, Baybayan S, Beck JC, Brown AE, Cheung F, Dahodwala N, Davis TL, Engeland M, Fearon C, Jones N, Mills K, Miyasaki JM, Naito A, Neault M, Nelson EC, Onyinanya E, Ropa C, Weintraub D
Mov Disord Clin Pract. 2024 Jul 19; doi: 10.1002/mdc3.14163. Epub 2024 Jul 19.
PMID: 39030949

A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study.
O’Donnell EA, Van Citters AD, Khayal IS, Wilson MM, Gustafson D, Barnato AE, Buccellato AC, Young C, Holthoff MM, Korsunskiy E, Tomlin SC, Cullinan AM, Steinbaugh AC, Hinson JJ, Johnson KR, Williams A, Thomson RM, Haines JM, Holmes AB, Bradley AD, Nelson EC, Kirkland KB
JMIR Hum Factors. 2024 May 8;11:e53194. doi: 10.2196/53194. Epub 2024 May 8.
PMID: 38717809

Engaging Long-Term Care Workers in Research: Recruitment Approaches and Participant Characteristics From a Randomized Controlled Trial to Improve COVID-19 Vaccine Confidence.
Johnson LC, Stevens G, Cantrell M, Little NR, Holahan TJ, Saunders CH, Thomeer RP, Sheppard R, Elwyn G, Durand MA
J Am Med Dir Assoc. 2024 Jun;25(6):104978. doi: 10.1016/j.jamda.2024.02.016. Epub 2024 Apr 6.
PMID: 38588798

Women’s experiences of maternity care in the United Kingdom during the COVID-19 pandemic: A follow-up systematic review and qualitative evidence synthesis.
Dasgupta T, Horgan G, Peterson L, Mistry HD, Balls E, Wilson M, Smith V, Boulding H, Sheen KS, Van Citters A, Nelson EC, Duncan EL, Dadelszen PV, RESILIENT Study Group, Rayment-Jones H, Silverio SA, Magee LA
Women Birth. 2024 May;37(3):101588. doi: 10.1016/j.wombi.2024.02.004. Epub 2024 Mar 1.
PMID: 38431430

Strategies to support cancer survivors at work: content analysis of cancer survivor, healthcare provider, and employer perspectives.
Forcino RC, Morrissette KJ, Stevens CJ, Lichtenstein JD, Rotenberg S, Schiffelbein JE, Connolly D, Lyons KD
J Cancer Surviv. 2024 Feb 5; doi: 10.1007/s11764-024-01539-w. Epub 2024 Feb 5.
PMID: 38316725

The Costs of Implementing a Conversation Aid for Uterine Fibroids in Multiple Health Care Settings.
Acquilano SC, Forcino RC, Schubbe D, Engel J, Tomaino M, Johnson LC, Durand MA, Elwyn G
Med Care. 2023 Oct 1;61(10):689-698. doi: 10.1097/MLR.0000000000001897. Epub 2023 Sep 7.
PMID: 37943524

The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact.
Van Citters AD, Buus-Frank ME, King JR, Seid M, Holthoff MM, Amin RS, Britto MT, Nelson EC, Marshall BC, Sabadosa KA
Learn Health Syst. 2023 Jul;7(3):e10356. doi: 10.1002/lrh2.10356. Epub 2022 Dec 20.
PMID: 37731865

Implementing shared decision making for early-stage breast cancer treatment using a coproduction learning collaborative: the SHAIR Collaborative protocol.
Schubbe D, Yen RW, Leavitt H, Forcino RC, Jacobs C, Friedman EB, McEvoy M, Rosenkranz KM, Rojas KE, Bradley A, Crayton E, Jackson S, Mitchell M, O’Malley AJ, Politi M, Tosteson ANA, Wong SL, Margenthaler J, Durand MA, Elwyn G
Implement Sci Commun. 2023 Jul 14;4(1):79. doi: 10.1186/s43058-023-00453-z. Epub 2023 Jul 14.
PMID: 37452387

The impact of adding cost information to a conversation aid to support shared decision making about low-risk prostate cancer treatment: Results of a stepped-wedge cluster randomised trial.
Politi MC, Forcino RC, Parrish K, Durand MA, O’Malley AJ, Moses R, Cooksey K, Elwyn G
Health Expect. 2023 Oct;26(5):2023-2039. doi: 10.1111/hex.13810. Epub 2023 Jul 2.
PMID: 37394739

Exploring Acceptability of Employment Interventions to Support People Living With Cancer: Qualitative Study of Cancer Survivors, Health Care Providers, and Employers.
Forcino RC, Rotenberg S, Morrissette KJ, Godzik CM, Lichtenstein JD, Schiffelbein JE, Stevens CJ, Sundar V, Brucker DL, Connolly D, Keysor J, Lyons KD
JMIR Form Res. 2023 Jun 26;7:e47263. doi: 10.2196/47263. Epub 2023 Jun 26.
PMID: 37358907

Practical thematic analysis: a guide for multidisciplinary health services research teams engaging in qualitative analysis.
Saunders CH, Sierpe A, von Plessen C, Kennedy AM, Leviton LC, Bernstein SL, Goldwag J, King JR, Marx CM, Pogue JA, Saunders RK, Van Citters A, Yen RW, Elwyn G, Leyenaar JK, Coproduction Laboratory
BMJ. 2023 Jun 8;381:e074256. doi: 10.1136/bmj-2022-074256. Epub 2023 Jun 8.
PMID: 37290778

Do payment programs incentivize shared decision making in US healthcare?
Elwyn G, Sierpe A, Forcino R
Patient Educ Couns. 2023 Aug;113:107798. doi: 10.1016/j.pec.2023.107798. Epub 2023 May 18.
PMID: 37224594

“It helps us say what’s important…” Developing Serious Illness Topics: A clinical visit agenda-setting tool.
Saunders CH, Durand MA, Scalia P, Kirkland KB, MacMartin MA, Barnato AE, Milne DW, Collison J, Bennett A, Wasp G, Nelson E, Elwyn G
Patient Educ Couns. 2023 Aug;113:107764. doi: 10.1016/j.pec.2023.107764. Epub 2023 Apr 18.
PMID: 37150152

Utilization Patterns and Outcomes of People With Diabetes and COVID-19: Evidence From United States Medicare Beneficiaries in 2020.
Austin AM, Leggett CG, Schmidt P, Bolin P, Nelson EC, Oliver BJ, King AC
Front Clin Diabetes Healthc. 2022;3:920478. doi: 10.3389/fcdhc.2022.920478. Epub 2022 Jul 5.
PMID: 36992748

Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians.
Van Citters AD, Taxter AJ, Mathew SD, Lawson E, Eseddi J, Del Gaizo V, Ahmad J, Bajaj P, Courtnay S, Davila L, Donaldson B, Kimura Y, Lee T, Mecchella JN, Nelson EC, Pompa S, Tabussi D, Johnson LC
ACR Open Rheumatol. 2023 Apr;5(4):190-200. doi: 10.1002/acr2.11533. Epub 2023 Feb 27.
PMID: 36852527

The CONFIDENT study protocol: a randomized controlled trial comparing two methods to increase long-term care worker confidence in the COVID-19 vaccines.
Stevens G, Johnson LC, Saunders CH, Schmidt P, Sierpe A, Thomeer RP, Little NR, Cantrell M, Yen RW, Pogue JA, Holahan T, Schubbe DC, Forcino RC, Fillbrook B, Sheppard R, Wooten C, Goldmann D, O’Malley AJ, Dube E, Durand MA, Elwyn G
BMC Public Health. 2023 Feb 23;23(1):384. doi: 10.1186/s12889-023-15266-x. Epub 2023 Feb 23.
PMID: 36823559

Harnessing the Collective Expertise of Patients, Care Partners, Clinical Teams, and Researchers Through a Coproduction Learning Health System: A Case Study of the Dartmouth Health Promise Partnership.
Tosteson ANA, Kirkland KB, Holthoff MM, Van Citters AD, Brooks GA, Cullinan AM, Dowling-Schmitt MC, Holmes AB, Meehan KR, Oliver BJ, Wasp GT, Wilson MM, Nelson EC
J Ambul Care Manage. 2023 Apr-Jun 01;46(2):127-138. doi: 10.1097/JAC.0000000000000460.
PMID: 36820633

Discussing Cost and Value in Patient Decision Aids and Shared Decision Making: A Call to Action.
Politi MC, Housten AJ, Forcino RC, Jansen J, Elwyn G
MDM Policy Pract. 2023 Jan-Jun;8(1):23814683221148651. doi: 10.1177/23814683221148651. Epub 2023 Jan 10.
PMID: 36643615

“The Last Thing You Have to Worry About”: A Thematic Analysis of Employment Challenges Faced by Cancer Survivors.
Lyons KD, Forcino RC, Rotenberg S, Schiffelbein JE, Morrissette KJ, Godzik CM, Lichtenstein JD
Int J Environ Res Public Health. 2022 Sep 7;19(18) doi: 10.3390/ijerph191811214. Epub 2022 Sep 7.
PMID: 36141485

Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advanced Cancer and Chronic Kidney Disease.
Perry LM, Morken V, Peipert JD, Yanez B, Garcia SF, Barnard C, Hirschhorn LR, Linder JA, Jordan N, Ackermann RT, Harris A, Kircher S, Mohindra N, Aggarwal V, Frazier R, Coughlin A, Bedjeti K, Weitzel M, Nelson EC, Elwyn G, Van Citters AD, O’Connor M, Cella D
JMIR Res Protoc. 2022 Sep 21;11(9):e38461. doi: 10.2196/38461. Epub 2022 Sep 21.
PMID: 36129747

A Rectal Cancer Surgical Decision Aid Is Not Enough: A Qualitative Study.
Goldwag JL, Saunders CH, Read JT, Durand MA, Elwyn G, Ivatury SJ
Dis Colon Rectum. 2022 Dec 1;65(12):1483-1493. doi: 10.1097/DCR.0000000000002444. Epub 2022 Aug 22.
PMID: 36037408

Eliciting patients’ healthcare goals and concerns: Do questions influence responses?
Scalia P, van Deen WK, Engel JA, Stevens G, Van Citters AD, Holthoff MM, Johnson LC, Kennedy AM, Reddy SB, Nelson EC, Elwyn G
Chronic Illn. 2022 Sep;18(3):708-716. doi: 10.1177/17423953211067417. Epub 2022 Jan 4.
PMID: 35993673

Co-Development of a Web Application (COVID-19 Social Site) for Long-Term Care Workers (“Something for Us”): User-Centered Design and Participatory Research Study.
Saunders CH, Sierpe A, Stevens G, Elwyn G, Cantrell M, Engel J, Gonzalez M, Hayward M, Huebner J, Johnson L, Jimenez A, Little NR, McKenna C, Onteeru M, Oo Khine M, Pogue J, Salinas Vargas JL, Schmidt P, Thomeer R, CONFIDENT Study Long-Term Care Partners, Durand MA
J Med Internet Res. 2022 Sep 22;24(9):e38359. doi: 10.2196/38359. Epub 2022 Sep 22.
PMID: 35926074

Work- and school-related distress among patients with cancer: Single-site retrospective chart review.
Forcino R, Lichtenstein J, Rotenberg S, Godzik C, Schiffelbein J, Morrissette K, Lyons K
J Psychosoc Oncol. 2023;41(2):242-249. doi: 10.1080/07347332.2022.2090886. Epub 2022 Jun 29.
PMID: 35767004

Prioritizing Measures That Matter Within a Person-Centered Oncology Learning Health System.
Van Citters AD, Kennedy AM, Kirkland KB, Dragnev KH, Leach SD, Buus-Frank ME, Malcolm EF, Holthoff MM, Holmes AB, Nelson EC, Reeves SA, Tosteson ANA, Promise Partnership Delphi Panel
JNCI Cancer Spectr. 2022 May 2;6(3) doi: 10.1093/jncics/pkac037.
PMID: 35736219

Psychometric assessment of the consideRATE questions, a new measure of serious illness experience, with an online simulation study.
Saunders CH, Durand MA, Kirkland KB, MacMartin MA, Barnato AE, Elwyn G
Patient Educ Couns. 2022 Jul;105(7):2581-2589. doi: 10.1016/j.pec.2022.01.002. Epub 2022 Jan 22.
PMID: 35260261

Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing.
Taxter A, Johnson L, Tabussi D, Kimura Y, Donaldson B, Lawson E, Del Gaizo V, Vitelli D, Pinter C, Van Citters A, Nelson E, Lee T
J Particip Med. 2022 Apr 22;14(1):e34735. doi: 10.2196/34735. Epub 2022 Apr 22.
PMID: 35133283

Translating research into practice-implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat.
Yildirim-Toruner C, Pooni R, Goh YI, Becker-Haimes E, Dearing JW, Fernandez ME, Morgan EM, Parry G, Burnham JM, Ardoin SP, Barbar-Smiley F, Chang JC, Chiraseveenuprapund P, Del Gaizo V, Eakin G, Johnson LC, Kimura Y, Knight AM, Kohlheim M, Lawson EF, Lo MS, Pan N, Ring A, Ronis T, Sadun RE, Smitherman EA, Taxter AJ, Taylor J, Vehe RK, Vora SS, Weiss JE, von Scheven E, MAS for the CARRA Implementation Science Workgroup
Pediatr Rheumatol Online J. 2022 Feb 7;20(1):10. doi: 10.1186/s12969-022-00665-y. Epub 2022 Feb 7.
PMID: 35130904

Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs.
Gifford AH, Ong T, Dowd C, Van Citters AD, Scalia P, Sabadosa KA, Sawicki GS
J Cyst Fibros. 2021 Dec;20 Suppl 3:9-13. doi: 10.1016/j.jcf.2021.08.034.
PMID: 34930545

Remote monitoring in telehealth care delivery across the U.S. cystic fibrosis care network.
Ong T, Van Citters AD, Dowd C, Fullmer J, List R, Pai SA, Ren CL, Scalia P, Solomon GM, Sawicki GS
J Cyst Fibros. 2021 Dec;20 Suppl 3:57-63. doi: 10.1016/j.jcf.2021.08.035.
PMID: 34930544

Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors.
Albon D, Van Citters AD, Ong T, Dieni O, Dowd C, Willis A, Sabadosa KA, Scalia P, Reno K, Oates GR, Schechter MS
J Cyst Fibros. 2021 Dec;20 Suppl 3:49-54. doi: 10.1016/j.jcf.2021.09.006.
PMID: 34930543

Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic.
Solomon GM, Bailey J, Lawlor J, Scalia P, Sawicki GS, Dowd C, Sabadosa KA, Van Citters A
J Cyst Fibros. 2021 Dec;20 Suppl 3:41-46. doi: 10.1016/j.jcf.2021.09.005.
PMID: 34930542

Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic.
Dowd C, Van Citters AD, Dieni O, Willis A, Powell L, Sabadosa KA
J Cyst Fibros. 2021 Dec;20 Suppl 3:3-8. doi: 10.1016/j.jcf.2021.08.028.
PMID: 34930539

Barriers and facilitators to implementing telehealth services during the COVID-19 pandemic: A qualitative analysis of interviews with cystic fibrosis care team members.
Van Citters AD, Dieni O, Scalia P, Dowd C, Sabadosa KA, Fliege JD, Jain M, Miller RW, Ren CL
J Cyst Fibros. 2021 Dec;20 Suppl 3:23-28. doi: 10.1016/j.jcf.2021.09.004.
PMID: 34930537

Financial impacts of the COVID-19 pandemic on cystic fibrosis care: lessons for the future.
Sawicki GS, Van Citters AD, Dieni O, Sabadosa KA, Willis A, Benitez D, Ong T, Dasenbrook EC
J Cyst Fibros. 2021 Dec;20 Suppl 3:16-20. doi: 10.1016/j.jcf.2021.09.008.
PMID: 34930535

Impact of the COVID-19 pandemic: How our response is shaping the future of cystic fibrosis care.
Sabadosa KA, Faro A, Nelson EC, Marshall BC
J Cyst Fibros. 2021 Dec;20 Suppl 3:1-2. doi: 10.1016/j.jcf.2021.09.002.
PMID: 34930534

An absence of equipoise: Examining surgeons’ decision talk during encounters with women considering breast cancer surgery.
Politi MC, Saunders CH, Grabinski VF, Yen RW, Cyr AE, Durand MA, Elwyn G
PLoS One. 2021;16(12):e0260704. doi: 10.1371/journal.pone.0260704. Epub 2021 Dec 16.
PMID: 34914705

International, national and local trends in the spread of COVID-19: a geographic view of COVID-19 spread and the role to be played by coproduction.
Schmidt P, Nelson EC, Kearney G, Kraft S, Oliver BJ
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii71-ii77. doi: 10.1093/intqhc/mzab074.
PMID: 34850905

Point-of-care dashboards promote coproduction of healthcare services for patients with inflammatory bowel disease.
Van Citters AD, Holthoff MM, Kennedy AM, Melmed GY, Oberai R, Siegel CA, Weaver A, Nelson EC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii40-ii47. doi: 10.1093/intqhc/mzab067.
PMID: 34849970

A ‘COVID Compass’ for navigating the pandemic.
Oliver BJ, Schmidt P, Tomlin S, Kraft SA, Fisher E, Nelson EC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii78-ii80. doi: 10.1093/intqhc/mzab053.
PMID: 34849969

A starter’s guide to learning and teaching how to coproduce healthcare services.
Johnson JK, Batalden P, Foster T, Arvidsson C, Batalden M, Forcino R, Gare BA
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii55-ii62. doi: 10.1093/intqhc/mzab131.
PMID: 34849966

Coproducing value during the COVID-19 pandemic.
Forcino RC, Von Plessen C
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii63-ii64. doi: 10.1093/intqhc/mzab056.
PMID: 34849963

Initial development of a self-assessment approach for coproduction value creation by an international community of practice.
Oliver BJ, Forcino RC, Batalden PB
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii48-ii54. doi: 10.1093/intqhc/mzab077.
PMID: 34849960

How Does Patient Socioeconomic Position Affect Breast Cancer Surgical Treatment and Mortality?: A Rapid Review.
Schubbe D, Yen RW, Durand MA
Breast Cancer (Dove Med Press). 2021;13:595-601. doi: 10.2147/BCTT.S293635. Epub 2021 Oct 27.
PMID: 34737634

A Mixed-Methods Evaluation of Patient Education Materials for Colorectal Cancer.
Kang R, Saunders CH, Carpenter-Song EA, Moore KO, Trooboff SW, Columbo JA, Goodney PP, Wong SL, Joga Ivatury S
Dis Colon Rectum. 2021 Oct 1;64(10):1249-1258. doi: 10.1097/DCR.0000000000001917.
PMID: 34516444

Assessing Shared Decision-Making in Cystic Fibrosis Care Using collaboRATE: A Cross-Sectional Study of 159 Programs.
Homa K, Stevens G, Forcino R, Scalia P, Mertz P, Elwyn G
J Patient Exp. 2021;8:23743735211034032. doi: 10.1177/23743735211034032. Epub 2021 Aug 20.
PMID: 34435088

Enrollment, retention, and strategies for including disadvantaged populations in randomized controlled trials: a systematic review protocol.
LaPlante A, Yen RW, Isaacs T, Crocker J, Demjen Z, Schubbe D, Kennedy AM, Engel J, O’Brien N, Richters C, Durand MA
Syst Rev. 2021 Aug 18;10(1):233. doi: 10.1186/s13643-021-01790-7. Epub 2021 Aug 18.
PMID: 34407862

Identifying and Predicting the Goals and Concerns Prioritised by Individuals with Inflammatory Bowel Disease.
Tse CS, Van Citters AD, Ricci B, Freundlich NZ, Lee M, Shah SA, Melmed GY, Siegel CA, van Deen WK, IBD Qorus
J Crohns Colitis. 2022 Mar 14;16(3):379-388. doi: 10.1093/ecco-jcc/jjab142.
PMID: 34350943

Comparing the impact of an icon array versus a bar graph on preference and understanding of risk information: Results from an online, randomized study.
Scalia P, Schubbe DC, Lu ES, Durand MA, Frascara J, Noel G, O’Malley AJ, Elwyn G
PLoS One. 2021;16(7):e0253644. doi: 10.1371/journal.pone.0253644. Epub 2021 Jul 23.
PMID: 34297713

Cost talk: protocol for a stepped-wedge cluster randomized trial of an intervention helping patients and urologic surgeons discuss costs of care for slow-growing prostate cancer during shared decision-making.
Politi MC, Forcino RC, Parrish K, Durand MA, O’Malley AJ, Elwyn G
Trials. 2021 Jun 29;22(1):422. doi: 10.1186/s13063-021-05369-4. Epub 2021 Jun 29.
PMID: 34187547

Personalized, Electronic Health Record-Integrated Decision Aid for Stroke Prevention in Atrial Fibrillation: A Small Cluster Randomized Trial and Qualitative Analysis of Efficacy and Acceptability.
Schott SL, Berkowitz J, Dodge SE, Petersen CL, Saunders CH, Sobti NK, Xu K, Coylewright M
Circ Cardiovasc Qual Outcomes. 2021 Jun;14(6):e007329. doi: 10.1161/CIRCOUTCOMES.120.007329. Epub 2021 Jun 10.
PMID: 34107740

Durand MA, Yen RW, O’Malley AJ, Schubbe D, Politi MC, Saunders CH, Dhage S, Rosenkranz K, Weichman K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, Mitchell M, Walling L, Marx C, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bergin E, Goodwin C, Acosta J, Miller C, Harris C, Barth R, Aft R, Feldman S, Cyr AE, Angeles C, Forcino R, Scalia P, Aarts JWM, van den Muijsenbergh M, Jiang S, Elwyn G
. 2021 Jun;
PMID: 36917651

Development of Balanced Whole System Value Measures for Inflammatory Bowel Disease Care in the IBD Qorus Collaborative Using a Modified Delphi Process.
Oliver BJ, Kennedy AM, van Deen WK, Weaver SA, Heller C, Holthoff MM, Bank J, Melmed GY, Siegel CA, Nelson EC
Inflamm Bowel Dis. 2022 Mar 2;28(3):327-336. doi: 10.1093/ibd/izab091.
PMID: 34037211

‘Because Everybody is so Different’: a qualitative analysis of the lived experiences and information needs of rectal cancer survivors.
Saunders CH, Goldwag JL, Read JT, Durand MA, Elwyn G, Ivatury SJ
BMJ Open. 2021 May 19;11(5):e043245. doi: 10.1136/bmjopen-2020-043245. Epub 2021 May 19.
PMID: 34011586

Processes for evidence summarization for patient decision aids: A Delphi consensus study.
Scalia P, Saunders CH, Dannenberg M, Mc Giguere A, Alper BS, Hoffmann T, Perestelo-Perez L, Durand MA, Elwyn G
Health Expect. 2021 Aug;24(4):1178-1186. doi: 10.1111/hex.13244. Epub 2021 May 15.
PMID: 33991160

Implementation and sustainability factors of two early-stage breast cancer conversation aids in diverse practices.
Schubbe D, Yen RW, Saunders CH, Elwyn G, Forcino RC, O’Malley AJ, Politi MC, Margenthaler J, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bradley A, Goodwin C, van den Muijsenbergh M, Aarts JWM, Scalia P, Durand MA
Implement Sci. 2021 May 10;16(1):51. doi: 10.1186/s13012-021-01115-1. Epub 2021 May 10.
PMID: 33971913

Integrating Option Grid Patient Decision Aids in the Epic Electronic Health Record: Case Study at 5 Health Systems.
Scalia P, Ahmad F, Schubbe D, Forcino R, Durand MA, Barr PJ, Elwyn G
J Med Internet Res. 2021 May 3;23(5):e22766. doi: 10.2196/22766. Epub 2021 May 3.
PMID: 33938806

Policy, accreditation and leadership: creating the conditions for effective coproduction of health, healthcare and science.
Lachman P, Nelson EC
Int J Qual Health Care. 2021 Nov 29;33(Supplement_2):ii1-ii3. doi: 10.1093/intqhc/mzab065.
PMID: 33822945

Basing Information on Comprehensive, Critically Appraised, and Up-to-Date Syntheses of the Scientific Evidence: An Update from the International Patient Decision Aid Standards.
Hoffmann TC, Bakhit M, Durand MA, Perestelo-Perez L, Saunders C, Brito JP
Med Decis Making. 2021 Oct;41(7):755-767. doi: 10.1177/0272989X21996622. Epub 2021 Mar 4.
PMID: 33660539

Do collaboRATE Scores Reflect Differences in Perceived Shared Decision-Making Across Diverse Patient Populations? Evidence From a Large-Scale Patient Experience Survey in the United States.
Forcino RC, Thygeson M, O’Malley AJ, Meinders MJ, Westert GP, Elwyn G
J Patient Exp. 2020 Oct;7(5):778-787. doi: 10.1177/2374373519891039. Epub 2019 Dec 1.
PMID: 33294615

Measuring Patient-Reported Shared Decision-Making to Promote Performance Transparency and Value-Based Payment: Assessment of collaboRATE’s Group-Level Reliability.
Forcino RC, Thygeson M, O’Malley AJ, Meinders MJ, Westert GP, Elwyn G
J Patient Exp. 2020 Oct;7(5):742-748. doi: 10.1177/2374373519884835. Epub 2019 Nov 3.
PMID: 33294610

What matters most: Randomized controlled trial of breast cancer surgery conversation aids across socioeconomic strata.
Durand MA, Yen RW, O’Malley AJ, Schubbe D, Politi MC, Saunders CH, Dhage S, Rosenkranz K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, Walling L, Marx CM, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bergin E, Goodwin C, Miller C, Harris C, Barth RJ Jr, Aft R, Feldman S, Cyr AE, Angeles CV, Jiang S, Elwyn G
Cancer. 2021 Feb 1;127(3):422-436. doi: 10.1002/cncr.33248. Epub 2020 Nov 10.
PMID: 33170506

COproduction VALUE creation in healthcare service (CO-VALUE): an international multicentre protocol to describe the application of a model of value creation for use in systems of coproduced healthcare services and to evaluate the initial feasibility, utility and acceptability of associated system-level value creation assessment approaches.
Oliver BJ, Batalden PB, DiMilia PR, Forcino RC, Foster TC, Nelson EC, Garre BA
BMJ Open. 2020 Oct 5;10(10):e037578. doi: 10.1136/bmjopen-2020-037578. Epub 2020 Oct 5.
PMID: 33020095

Women Who Are Young, Non-White, and with Lower Socioeconomic Status Report Higher Financial Toxicity up to 1 Year After Breast Cancer Surgery: A Mixed-Effects Regression Analysis.
Politi MC, Yen RW, Elwyn G, O’Malley AJ, Saunders CH, Schubbe D, Forcino R, Durand MA
Oncologist. 2021 Jan;26(1):e142-e152. doi: 10.1002/onco.13544. Epub 2020 Oct 12.
PMID: 33000504

User-Centered Design of the consideRATE Questions, a Measure of People’s Experiences When They Are Seriously Ill.
Saunders CH, Durand MA, Scalia P, Kirkland KB, MacMartin MA, Barnato AE, Milne DW, Collison J, Jaggars A, Butt T, Wasp G, Nelson E, Elwyn G
J Pain Symptom Manage. 2021 Mar;61(3):555-565.e5. doi: 10.1016/j.jpainsymman.2020.08.002. Epub 2020 Aug 16.
PMID: 32814165

Text-only and picture conversation aids both supported shared decision making for breast cancer surgery: Analysis from a cluster randomized trial.
Yen RW, Durand MA, Harris C, Cohen S, Ward A, O’Malley AJ, Schubbe D, Saunders CH, Elwyn G
Patient Educ Couns. 2020 Nov;103(11):2235-2243. doi: 10.1016/j.pec.2020.07.015. Epub 2020 Jul 28.
PMID: 32782181

Routine patient-reported experience measurement of shared decision-making in the USA: a qualitative study of the current state according to frontrunners.
Forcino RC, Meinders MJ, Engel JA, O’Malley AJ, Elwyn G
BMJ Open. 2020 Jun 7;10(6):e037087. doi: 10.1136/bmjopen-2020-037087. Epub 2020 Jun 7.
PMID: 32513894

Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices.
Lyles CR, Nelson EC, Frampton S, Dykes PC, Cemballi AG, Sarkar U
Ann Intern Med. 2020 Jun 2;172(11 Suppl):S123-S129. doi: 10.7326/M19-0876.
PMID: 32479176

Using pictures to convey health information: A systematic review and meta-analysis of the effects on patient and consumer health behaviors and outcomes.
Schubbe D, Scalia P, Yen RW, Saunders CH, Cohen S, Elwyn G, van den Muijsenbergh M, Durand MA
Patient Educ Couns. 2020 Oct;103(10):1935-1960. doi: 10.1016/j.pec.2020.04.010. Epub 2020 May 11.
PMID: 32466864

Formative evaluation of a dashboard to support coproduction of healthcare services in cystic fibrosis.
Van Citters AD, Gifford AH, Brady C, Dunitz JM, Elmhirst M, Flath J, Laguna TA, Moore B, Prickett ML, Riordan M, Savant AP, Gore W, Jian S, Soper M, Marshall BC, Nelson EC, Sabadosa KA
J Cyst Fibros. 2020 Sep;19(5):768-776. doi: 10.1016/j.jcf.2020.03.009. Epub 2020 Apr 27.
PMID: 32354650

Networked health care: Rethinking value creation in learning health care systems.
Fjeldstad ØD, Johnson JK, Margolis PA, Seid M, Hoglund P, Batalden PB
Learn Health Syst. 2020 Apr;4(2):e10212. doi: 10.1002/lrh2.10212. Epub 2019 Dec 5.
PMID: 32313837

A qualitative study of design stakeholders’ views of developing and implementing a registry-based learning health system.
Dixon-Woods M, Campbell A, Chang T, Martin G, Georgiadis A, Heney V, Chew S, Van Citters A, Sabadosa KA, Nelson EC
Implement Sci. 2020 Mar 6;15(1):16. doi: 10.1186/s13012-020-0976-1. Epub 2020 Mar 6.
PMID: 32143678

No date for the PROM: the association between patient-reported health events and clinical coding in primary care.
Barr PJ, Berry SA, Gozansky WS, McQuillan DB, Ross C, Carmichael D, Austin AM, Satterlund TD, Schifferdecker KE, Council L, Dannenberg MD, Wampler AT, Nelson EC, Skinner J
J Patient Rep Outcomes. 2020 Mar 2;4(1):17. doi: 10.1186/s41687-020-0183-5. Epub 2020 Mar 2.
PMID: 32124102

The Learning Curve for Shared Decision-making in Symptomatic Aortic Stenosis.
Coylewright M, O’Neill E, Sherman A, Gerling M, Adam K, Xu K, Grande SW, Dauerman HL, Dodge SE, Sobti NK, Saunders CH, Schott SL, Elwyn G, Durand MA
JAMA Cardiol. 2020 Apr 1;5(4):442-448. doi: 10.1001/jamacardio.2019.5719.
PMID: 31995126

Encounter Decision Aids Can Prompt Breast Cancer Surgery Cost Discussions: Analysis of Recorded Consultations.
Politi MC, Yen RW, Elwyn G, Kurien N, Czerwinski SG, Schubbe D, Saunders CH, Durand MA
Med Decis Making. 2020 Jan;40(1):62-71. doi: 10.1177/0272989X19893308. Epub 2019 Dec 12.
PMID: 31829111

Implementation of the uterine fibroids Option Grid patient decision aids across five organizational settings: a randomized stepped-wedge study protocol.
Scalia P, Durand MA, Forcino RC, Schubbe D, Barr PJ, O’Brien N, O’Malley AJ, Foster T, Politi MC, Laughlin-Tommaso S, Banks E, Madden T, Anchan RM, Aarts JWM, Velentgas P, Balls-Berry J, Bacon C, Adams-Foster M, Mulligan CC, Venable S, Cochran NE, Elwyn G
Implement Sci. 2019 Sep 2;14(1):88. doi: 10.1186/s13012-019-0933-z. Epub 2019 Sep 2.
PMID: 31477140

Chronic Condition Measurement Requires Engagement, Not Measurement Alone.
Austin AM, Carmichael D, Berry S, Gozansky WS, Nelson EC, Skinner JS, Barr PJ
J Ambul Care Manage. 2019 Oct/Dec;42(4):295-304. doi: 10.1097/JAC.0000000000000300.
PMID: 31449165

Turning Feed-forward and Feedback Processes on Patient-reported Data into Intelligent Action and Informed Decision-making: Case Studies and Principles.
Oliver BJ, Nelson EC, Kerrigan CL
Med Care. 2019 May;57 Suppl 5 Suppl 1:S31-S37. doi: 10.1097/MLR.0000000000001088.
PMID: 30985594

Healthcare Options for People Experiencing Depression (HOPE*D): the development and pilot testing of an encounter-based decision aid for use in primary care.
Barr PJ, Forcino RC, Dannenberg MD, Mishra M, Turner E, Zisman-Ilani Y, Matthews J, Hinn M, Bruce M, Elwyn G
BMJ Open. 2019 Apr 8;9(4):e025375. doi: 10.1136/bmjopen-2018-025375. Epub 2019 Apr 8.
PMID: 30962232

Modified Delphi survey for the evidence summarisation of patient decision aids: Study protocol.
Durand MA, Dannenberg MD, Saunders CH, Giguere AMC, Alper BS, Hoffmann T, Perestelo-Perez L, Campbell ST, Elwyn G
BMJ Open. 2019 Mar 23;9(3):e026701. doi: 10.1136/bmjopen-2018-026701. Epub 2019 Mar 23.
PMID: 30904876

Serious Choices: A Systematic Environmental Scan of Decision Aids and Their Use for Seriously Ill People Near Death.
Saunders CH, Patel K, Kang H, Elwyn G, Kirkland K, Durand MA
J Hosp Med. 2019 May;14(5):294-302. doi: 10.12788/jhm.3110.
PMID: 30794146

Bring on the Machines: Could Machine Learning Improve the Quality of Patient Education Materials? A Systematic Search and Rapid Review.
Saunders CH, Petersen CL, Durand MA, Bagley PJ, Elwyn G
JCO Clin Cancer Inform. 2018 Dec;2:1-16. doi: 10.1200/CCI.18.00010.
PMID: 30652611

How do healthcare professionals working in accountable care organisations understand patient activation and engagement? Qualitative interviews across two time points.
Mishra MK, Saunders CH, Rodriguez HP, Shortell SM, Fisher E, Elwyn G
BMJ Open. 2018 Oct 31;8(10):e023068. doi: 10.1136/bmjopen-2018-023068. Epub 2018 Oct 31.
PMID: 30385443

US-based cross-sectional survey of clinicians’ knowledge and attitudes about shared decision-making across healthcare professions and specialties.
Forcino RC, Yen RW, Aboumrad M, Barr PJ, Schubbe D, Elwyn G, Durand MA
BMJ Open. 2018 Oct 18;8(10):e022730. doi: 10.1136/bmjopen-2018-022730. Epub 2018 Oct 18.
PMID: 30341128

Does pictorial health information improve health behaviours and other outcomes? A systematic review protocol.
Schubbe D, Cohen S, Yen RW, Muijsenbergh MV, Scalia P, Saunders CH, Durand MA
BMJ Open. 2018 Aug 13;8(8):e023300. doi: 10.1136/bmjopen-2018-023300. Epub 2018 Aug 13.
PMID: 30104319

A Person-Centered, Registry-Based Learning Health System for Palliative Care: A Path to Coproducing Better Outcomes, Experience, Value, and Science.
Kamal AH, Kirkland KB, Meier DE, Morgan TS, Nelson EC, Pantilat SZ
J Palliat Med. 2018 Mar;21(S2):S61-S67. doi: 10.1089/jpm.2017.0354. Epub 2017 Nov 1.
PMID: 29091509

Using patient-reported outcome measurement to improve patient care.
Øvretveit J, Zubkoff L, Nelson EC, Frampton S, Knudsen JL, Zimlichman E
Int J Qual Health Care. 2017 Oct 1;29(6):874-879. doi: 10.1093/intqhc/mzx108.
PMID: 29025001

Patient-Centered Organizational Statements: Merely Rhetoric? A Survey of Health Care Leaders.
Nelson WA, Forcino RC, Elwyn G
Health Care Manag (Frederick). 2017 Oct/Dec;36(4):342-346. doi: 10.1097/HCM.0000000000000186.
PMID: 28953578

Domains associated with successful quality improvement in healthcare – a nationwide case study.
Brandrud AS, Nyen B, Hjortdahl P, Sandvik L, Helljesen Haldorsen GS, Bergli M, Nelson EC, Bretthauer M
BMC Health Serv Res. 2017 Sep 13;17(1):648. doi: 10.1186/s12913-017-2454-2. Epub 2017 Sep 13.
PMID: 28903723

Serious Choices: A Protocol for an Environmental Scan of Patient Decision Aids for Seriously Ill People at Risk of Death Facing Choices about Life-Sustaining Treatments.
Saunders CH, Elwyn G, Kirkland K, Durand MA
Patient. 2018 Feb;11(1):97-106. doi: 10.1007/s40271-017-0268-2.
PMID: 28825182

Using CollaboRATE, a brief patient-reported measure of shared decision making: Results from three clinical settings in the United States.
Forcino RC, Barr PJ, O’Malley AJ, Arend R, Castaldo MG, Ozanne EM, Percac-Lima S, Stults CD, Tai-Seale M, Thompson R, Elwyn G
Health Expect. 2018 Feb;21(1):82-89. doi: 10.1111/hex.12588. Epub 2017 Jul 5.
PMID: 28678426

Evidence on the Validity of a Comprehensive Health Risk Index and Implications for Ambulatory Care and Population Health Management.
Massaro JM, Murabito JM, Au R, Carnahan E, Morgan TS, Murray C, Fisher ES, Nelson EC, Lim SS, DʼAgostino RB Sr
J Ambul Care Manage. 2017 Oct/Dec;40(4):297-304. doi: 10.1097/JAC.0000000000000177.
PMID: 28350635

Evaluating CollaboRATE in a clinical setting: analysis of mode effects on scores, response rates and costs of data collection.
Barr PJ, Forcino RC, Thompson R, Ozanne EM, Arend R, Castaldo MG, O’Malley AJ, Elwyn G
BMJ Open. 2017 Mar 24;7(3):e014681. doi: 10.1136/bmjopen-2016-014681. Epub 2017 Mar 24.
PMID: 28341691

Fostering Collaboration Through Creation of an IBD Learning Health System.
Johnson LC, Melmed GY, Nelson EC, Holthoff MM, Weaver SA, Morgan TS, Siegel CA
Am J Gastroenterol. 2017 Mar;112(3):406-408. doi: 10.1038/ajg.2017.9. Epub 2017 Feb 14.
PMID: 28195179

Developing and Pilot Testing a Spanish Translation of CollaboRATE for Use in the United States.
Forcino RC, Bustamante N, Thompson R, Percac-Lima S, Elwyn G, Perez-Arechaederra D, Barr PJ
PLoS One. 2016;11(12):e0168538. doi: 10.1371/journal.pone.0168538. Epub 2016 Dec 21.
PMID: 28002422

Creating a culture of health: evolving healthcare systems and patient engagement.
Lindblad S, Ernestam S, Van Citters AD, Lind C, Morgan TS, Nelson EC
QJM. 2017 Mar 1;110(3):125-129. doi: 10.1093/qjmed/hcw188.
PMID: 27803364

Health Care Delivery Practices in Huntington’s Disease Specialty Clinics: An International Survey.
Frich JC, Rae D, Roxburgh R, Miedzybrodzka ZH, Edmondson M, Pope EB, Goodman L, Haddad MS, Giuliano J, Nelson EC, Guttman M, Nance M
J Huntingtons Dis. 2016 Jun 27;5(2):207-13. doi: 10.3233/JHD-160192.
PMID: 27372053

Patient focused registries can improve health, care, and science.
Nelson EC, Dixon-Woods M, Batalden PB, Homa K, Van Citters AD, Morgan TS, Eftimovska E, Fisher ES, Ovretveit J, Harrison W, Lind C, Lindblad S
BMJ. 2016 Jul 1;354:i3319. doi: 10.1136/bmj.i3319. Epub 2016 Jul 1.
PMID: 27370543

Competing priorities in treatment decision-making: a US national survey of individuals with depression and clinicians who treat depression.
Barr PJ, Forcino RC, Mishra M, Blitzer R, Elwyn G
BMJ Open. 2016 Jan 8;6(1):e009585. doi: 10.1136/bmjopen-2015-009585. Epub 2016 Jan 8.
PMID: 26747036

Validation of a new predictive risk model: measuring the impact of the major modifiable risks of death for patients and populations.
Lim SS, Carnahan E, Nelson EC, Gillespie CW, Mokdad AH, Murray CJ, Fisher ES
Popul Health Metr. 2015;13:27. doi: 10.1186/s12963-015-0059-8. Epub 2015 Oct 1.
PMID: 26435702

Development and Validation of the CPO Scale, a New Instrument for Evaluation of Health Care Improvement Efforts.
Brandrud AS, Haldorsen GS, Nyen B, Vardal M, Nelson EC, Sandvik L, Hjortdahl P
Qual Manag Health Care. 2015 Jul-Sep;24(3):109-20. doi: 10.1097/QMH.0000000000000065.
PMID: 26115058

Using patient-reported outcomes in routine practice: three novel use cases and implications.
Forsberg HH, Nelson EC, Reid R, Grossman D, Mastanduno MP, Weiss LT, Fisher ES, Weinstein JN
J Ambul Care Manage. 2015 Apr-Jun;38(2):188-95. doi: 10.1097/JAC.0000000000000052.
PMID: 25748267

Response to: ‘Working smarter, not harder’ by Professor Iedema.
Hayes CW, Batalden PB, Goldmann D
BMJ Qual Saf. 2015 Apr;24(4):289-90. doi: 10.1136/bmjqs-2015-004029. Epub 2015 Feb 19.
PMID: 25700004

Patient reported outcome measures in practice.
Nelson EC, Eftimovska E, Lind C, Hager A, Wasson JH, Lindblad S
BMJ. 2015 Feb 10;350:g7818. doi: 10.1136/bmj.g7818. Epub 2015 Feb 10.
PMID: 25670183

A ‘work smarter, not harder’ approach to improving healthcare quality.
Hayes CW, Batalden PB, Goldmann D
BMJ Qual Saf. 2015 Feb;24(2):100-2. doi: 10.1136/bmjqs-2014-003673. Epub 2014 Dec 17.
PMID: 25518954

Mollie’s story: a case and a place that exemplify person-centered care.
Nelson EC, Lazar J
J Ambul Care Manage. 2015 Jan-Mar;38(1):87-90. doi: 10.1097/JAC.0000000000000053.
PMID: 25469582

The SPORT value compass: do the extra costs of undergoing spine surgery produce better health benefits?
Weinstein JN, Tosteson AN, Tosteson TD, Lurie JD, Abdu WA, Mirza SK, Zhao W, Morgan TS, Nelson EC
Med Care. 2014 Dec;52(12):1055-63. doi: 10.1097/MLR.0000000000000250.
PMID: 25334052

Self-care: the new principal care.
Nelson EC, Meyer G, Bohmer R
J Ambul Care Manage. 2014 Jul-Sep;37(3):219-25. doi: 10.1097/JAC.0000000000000036.
PMID: 24887523

Measuring Adverse Events in Hospitalized Patients: An Administrative Method for Measuring Harm.
Martin J, Benjamin EM, Craver C, Kroch EA, Nelson EC, Bankowitz R
J Patient Saf. 2016 Sep;12(3):125-31. doi: 10.1097/PTS.0000000000000070.
PMID: 24717528

The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement.
Sabadosa KA, Batalden PB
BMJ Qual Saf. 2014 Apr;23 Suppl 1:i90-4. doi: 10.1136/bmjqs-2013-002782.
PMID: 24608555

Mobility, mood and site of care impact health related quality of life in Parkinson’s disease.
Nutt JG, Siderowf AD, Guttman M, Schmidt PN, Zamudio JI, Wu SS, Okun MS, Simuni T, Parashos SA, Dahodwala NA, Davis TL, Giladi N, Gurevich T, Hauser RA, Jankovic J, Lyons KE, Marsh L, Miyasaki JM, Morgan JC, Santiago AJ, Tarsy D, Mari Z, Malaty IA, Nelson EC, National Parkinson Foundation Quality Improvement Initiative Investigators
Parkinsonism Relat Disord. 2014 Mar;20(3):274-9. doi: 10.1016/j.parkreldis.2013.10.004. Epub 2013 Oct 16.
PMID: 24182524

Coaching interprofessional health care improvement teams: the coachee, the coach and the leader perspectives.
Godfrey MM, Andersson-Gare B, Nelson EC, Nilsson M, Ahlstrom G
J Nurs Manag. 2014 May;22(4):452-64. doi: 10.1111/jonm.12068. Epub 2013 Jun 20.
PMID: 23782339

Development and validation of a cystic fibrosis patient and family member experience of care survey.
Homa K, Sabadosa KA, Nelson EC, Rogers WH, Marshall BC
Qual Manag Health Care. 2013 Apr-Jun;22(2):100-16. doi: 10.1097/QMH.0b013e31828bc3bc.
PMID: 23542365

Which elements of improvement collaboratives are most effective? A cluster-randomized trial.
Gustafson DH, Quanbeck AR, Robinson JM, Ford JH 2nd, Pulvermacher A, French MT, McConnell KJ, Batalden PB, Hoffman KA, McCarty D
Addiction. 2013 Jun;108(6):1145-57. doi: 10.1111/add.12117. Epub 2013 Mar 1.
PMID: 23316787

Insights from transformations under way at four Brookings-Dartmouth accountable care organization pilot sites.
Larson BK, Van Citters AD, Kreindler SA, Carluzzo KL, Gbemudu JN, Wu FM, Nelson EC, Shortell SM, Fisher ES
Health Aff (Millwood). 2012 Nov;31(11):2395-406. doi: 10.1377/hlthaff.2011.1219.
PMID: 23129669

A framework for evaluating the formation, implementation, and performance of accountable care organizations.
Fisher ES, Shortell SM, Kreindler SA, Van Citters AD, Larson BK
Health Aff (Millwood). 2012 Nov;31(11):2368-78. doi: 10.1377/hlthaff.2012.0544.
PMID: 23129666

More quality measures versus measuring what matters: a call for balance and parsimony.
Meyer GS, Nelson EC, Pryor DB, James B, Swensen SJ, Kaplan GS, Weissberg JI, Bisognano M, Yates GR, Hunt GC
BMJ Qual Saf. 2012 Nov;21(11):964-8. doi: 10.1136/bmjqs-2012-001081. Epub 2012 Aug 14.
PMID: 22893696

The medium is the (health) measure: patient engagement using personal technologies.
Wasson JH, Forsberg HH, Lindblad S, Mazowita G, McQuillen K, Nelson EC
J Ambul Care Manage. 2012 Apr-Jun;35(2):109-17. doi: 10.1097/JAC.0b013e31824a235e.
PMID: 22415284

How do centres begin the process to prevent contrast-induced acute kidney injury: a report from a new regional collaborative.
Brown JR, McCullough PA, Splaine ME, Davies L, Ross CS, Dauerman HL, Robb JF, Boss R, Goldberg DJ, Fedele FA, Kellett MA, Phillips WJ, Ver Lee PN, Nelson EC, MacKenzie TA, O’Connor GT, Sarnak MJ, Malenka DJ, Northern New England Cardiovascular Disease Study Group
BMJ Qual Saf. 2012 Jan;21(1):54-62. doi: 10.1136/bmjqs-2011-000041. Epub 2011 Sep 2.
PMID: 21890755

Building experiential learning about quality improvement into a medical school curriculum: the Dartmouth experience.
Ogrinc G, Nierenberg DW, Batalden PB
Health Aff (Millwood). 2011 Apr;30(4):716-22. doi: 10.1377/hlthaff.2011.0072.
PMID: 21471493

Automated detection of harm in healthcare with information technology: a systematic review.
Govindan M, Van Citters AD, Nelson EC, Kelly-Cummings J, Suresh G
Qual Saf Health Care. 2010 Oct;19(5):e11. doi: 10.1136/qshc.2009.033027. Epub 2010 Jul 29.
PMID: 20671081

Institutional attributes associated with innovation and improvement: results of a multisite study.
Philibert I, Johnston MJ, Hruska L, Shapiro JA, Friedmann P, Gardent PB, Batalden PB, Leach DC
J Grad Med Educ. 2010 Jun;2(2):306-12. doi: 10.4300/JGME-02-02-29.
PMID: 21975639

A pilot evaluation of the In SHAPE individualized health promotion intervention for adults with mental illness.
Van Citters AD, Pratt SI, Jue K, Williams G, Miller PT, Xie H, Bartels SJ
Community Ment Health J. 2010 Dec;46(6):540-52. doi: 10.1007/s10597-009-9272-x. Epub 2009 Dec 10.
PMID: 20012197

The Department of Veterans Affairs National Quality Scholars Fellowship Program: experience from 10 years of training quality scholars.
Splaine ME, Ogrinc G, Gilman SC, Aron DC, Estrada CA, Rosenthal GE, Lee S, Dittus RS, Batalden PB
Acad Med. 2009 Dec;84(12):1741-8. doi: 10.1097/ACM.0b013e3181bfdcef.
PMID: 19940583

Sharpening the focus on systems-based practice.
Batalden PB, Leach DC
J Grad Med Educ. 2009 Sep;1(1):1-3. doi: 10.4300/01.01.0001.
PMID: 21975699

Improving the simple, complicated and complex realities of community-acquired pneumonia.
Liu SK, Homa K, Butterly JR, Kirkland KB, Batalden PB
Qual Saf Health Care. 2009 Apr;18(2):93-8. doi: 10.1136/qshc.2008.028514.
PMID: 19342521

Development of the SQUIRE Publication Guidelines: evolution of the SQUIRE project.
Davidoff F, Batalden PB, Stevens DP, Ogrinc GS, Mooney SE, SQUIRE Development Group
Jt Comm J Qual Patient Saf. 2008 Nov;34(11):681-7.
PMID: 19025090

Clinical microsystems, Part 4. Building innovative population-specific mesosystems.
McKinley KE, Berry SA, Laam LA, Doll MC, Brin KP, Bothe A Jr, Godfrey MM, Nelson EC, Batalden PB
Jt Comm J Qual Patient Saf. 2008 Nov;34(11):655-63.
PMID: 19025086

Clinical microsystems, Part 3. Transformation of two hospitals using microsystem, mesosystem, and macrosystem strategies.
Godfrey MM, Melin CN, Muething SE, Batalden PB, Nelson EC
Jt Comm J Qual Patient Saf. 2008 Oct;34(10):591-603.
PMID: 18947119

Preferences of older and younger adults with serious mental illness for involvement in decision-making in medical and psychiatric settings.
O’Neal EL, Adams JR, McHugo GJ, Van Citters AD, Drake RE, Bartels SJ
Am J Geriatr Psychiatry. 2008 Oct;16(10):826-33. doi: 10.1097/JGP.0b013e318181f992.
PMID: 18827229

Clinical microsystems, part 2. Learning from micro practices about providing patients the care they want and need.
Wasson JH, Anders SG, Moore LG, Ho L, Nelson EC, Godfrey MM, Batalden PB
Jt Comm J Qual Patient Saf. 2008 Aug;34(8):445-52.
PMID: 18714745

Clinical microsystems, part 1. The building blocks of health systems.
Nelson EC, Godfrey MM, Batalden PB, Berry SA, Bothe AE Jr, McKinley KE, Melin CN, Muething SE, Moore LG, Wasson JH, Nolan TW
Jt Comm J Qual Patient Saf. 2008 Jul;34(7):367-78.
PMID: 18677868

Learning what matters for patients: qualitative evaluation of a health promotion program for those with serious mental illness.
Shiner B, Whitley R, Van Citters AD, Pratt SI, Bartels SJ
Health Promot Int. 2008 Sep;23(3):275-82. doi: 10.1093/heapro/dan018. Epub 2008 Jun 13.
PMID: 18552363

Residency education, preventive medicine, and population health care improvement: the Dartmouth-Hitchcock Leadership Preventive Medicine approach.
Foster T, Regan-Smith M, Murray C, Dysinger W, Homa K, Johnson LM, Batalden PB
Acad Med. 2008 Apr;83(4):390-8. doi: 10.1097/ACM.0b013e3181667da9.
PMID: 18367902

Using a hypothetical scenario to inform psychiatric advance directives.
Van Citters AD, Naidoo U, Foti ME
Psychiatr Serv. 2007 Nov;58(11):1467-71.
PMID: 17978258

Using a Malcolm Baldrige framework to understand high-performing clinical microsystems.
Foster TC, Johnson JK, Nelson EC, Batalden PB
Qual Saf Health Care. 2007 Oct;16(5):334-41.
PMID: 17913773

Preparing the personal physician for practice (P(4)): redesigning family medicine residencies: new wine, new wineskins, learning, unlearning, and a journey to authenticity.
Leach DC, Batalden PB
J Am Board Fam Med. 2007 Jul-Aug;20(4):342-7; discussion 329-31.
PMID: 17615414

What is “quality improvement” and how can it transform healthcare?
Batalden PB, Davidoff F
Qual Saf Health Care. 2007 Feb;16(1):2-3.
PMID: 17301192

Evidence-based review of pharmacologic and nonpharmacologic treatments for older adults with schizophrenia.
Van Citters AD, Pratt SI, Bartels SJ, Jeste DV
Psychiatr Clin North Am. 2005 Dec;28(4):913-39, ix.
PMID: 16325735

Improving mental health assessment and service planning practices for older adults: a controlled comparison study.
Bartels SJ, Miles KM, Van Citters AD, Forester BP, Cohen MJ, Xie H
Ment Health Serv Res. 2005 Dec;7(4):213-23.
PMID: 16320104

Publicly reporting comprehensive quality and cost data: a health care system’s transparency initiative.
Nelson EC, Homa K, Mastanduno MP, Fisher ES, Batalden PB, Malcolm EF, Foster TC, Likosky DS, Guth JA, Gardent PB
Jt Comm J Qual Patient Saf. 2005 Oct;31(10):573-84.
PMID: 16294670

Quality improvement learning collaboratives.
Ayers LR, Beyea SC, Godfrey MM, Harper DC, Nelson EC, Batalden PB
Qual Manag Health Care. 2005 Oct-Dec;14(4):234-47.
PMID: 16227872

A systematic review of the effectiveness of community-based mental health outreach services for older adults.
Van Citters AD, Bartels SJ
Psychiatr Serv. 2004 Nov;55(11):1237-49.
PMID: 15534012

How many patients are needed to provide reliable evaluations of individual clinicians?
Nelson EC, Gentry MA, Mook KH, Spritzer KL, Higgins JH, Hays RD
Med Care. 2004 Mar;42(3):259-66.
PMID: 15076825

Good measurement for good improvement work.
Nelson EC, Splaine ME, Plume SK, Batalden P
Qual Manag Health Care. 2004 Jan-Mar;13(1):1-16.
PMID: 14976903

Microsystems in health care: Part 9. Developing small clinical units to attain peak performance.
Batalden PB, Nelson EC, Edwards WH, Godfrey MM, Mohr JJ
Jt Comm J Qual Saf. 2003 Nov;29(11):575-85.
PMID: 14619350

Microsystems in health care: Part 8. Developing people and improving work life: what front-line staff told us.
Huber TP, Godfrey MM, Nelson EC, Mohr JJ, Campbell C, Batalden PB
Jt Comm J Qual Saf. 2003 Oct;29(10):512-22.
PMID: 14567260

Microsystems in health care: Part 5. How leaders are leading.
Batalden PB, Nelson EC, Mohr JJ, Godfrey MM, Huber TP, Kosnik L, Ashling K
Jt Comm J Qual Saf. 2003 Jun;29(6):297-308.
PMID: 14564748

Microsystems in health care: Part 6. Designing patient safety into the microsystem.
Mohr JJ, Barach P, Cravero JP, Blike GT, Godfrey MM, Batalden PB, Nelson EC
Jt Comm J Qual Saf. 2003 Aug;29(8):401-8.
PMID: 12953604

Microsystems in health care: Part 4. Planning patient-centered care.
Wasson JH, Godfrey MM, Nelson EC, Mohr JJ, Batalden PB
Jt Comm J Qual Saf. 2003 May;29(5):227-37.
PMID: 12751303

Microsystems in health care: Part 3. Planning patient-centered services.
Godfrey MM, Nelson EC, Wasson JH, Mohr JJ, Batalden PB
Jt Comm J Qual Saf. 2003 Apr;29(4):159-70.
PMID: 12698806

Microsystems in health care: Part 2. Creating a rich information environment.
Nelson EC, Batalden PB, Homa K, Godfrey MM, Campbell C, Headrick LA, Huber TP, Mohr JJ, Wasson JH
Jt Comm J Qual Saf. 2003 Jan;29(1):5-15.
PMID: 12528569

A curriculum for training quality scholars to improve the health and health care of veterans and the community at large.
Splaine ME, Aron DC, Dittus RS, Kiefe CI, Landefeld CS, Rosenthal GE, Weeks WB, Batalden PB
Qual Manag Health Care. 2002 Spring;10(3):10-8.
PMID: 12512460

Knowledge for improvement: who will lead the learning?
Batalden PB, Stevens DP, Kizer KW
Qual Manag Health Care. 2002 Spring;10(3):3-9.
PMID: 12512459

Microsystems in health care: Part 1. Learning from high-performing front-line clinical units.
Nelson EC, Batalden PB, Huber TP, Mohr JJ, Godfrey MM, Headrick LA, Wasson JH
Jt Comm J Qual Improv. 2002 Sep;28(9):472-93.
PMID: 12216343

Promoting quality improvement research.
Frank JE, Kim TM, Nelson EC
Jt Comm J Qual Improv. 2002 Aug;28(8):451-2, 417.
PMID: 12174409

Improving safety on the front lines: the role of clinical microsystems.
Mohr JJ, Batalden PB
Qual Saf Health Care. 2002 Mar;11(1):45-50.
PMID: 12078369

How shall we prepare the future healthcare professional?
Batalden PB
Front Health Serv Manage. 2001 Winter;18(2):39-42; discussion 33-4.
PMID: 11799601

If improvement of the quality and value of health and health care is the goal, why focus on health professional development?
Batalden PB
J Nurs Care Qual. 2001 Jul;15(4):17-28.
PMID: 11452639

Using an improvement model to reduce adverse drug events in VA facilities.
Weeks WB, Mills PD, Dittus RS, Aron DC, Batalden PB
Jt Comm J Qual Improv. 2001 May;27(5):243-54.
PMID: 11367772

Using data to improve medical practice by measuring processes and outcomes of care.
Nelson EC, Splaine ME, Godfrey MM, Kahn V, Hess A, Batalden P, Plume SK
Jt Comm J Qual Improv. 2000 Dec;26(12):667-85.
PMID: 11143207

Routine, single-item screening to identify abusive relationships in women.
Wasson JH, Jette AM, Anderson J, Johnson DJ, Nelson EC, Kilo CM
J Fam Pract. 2000 Nov;49(11):1017-22.
PMID: 11093568

Application of quality improvement to surgical practice.
Hamby LS, Colacchio TA, Nelson EC
Surgery. 2000 Nov;128(5):836-44.
PMID: 11056449

Should patients in quality-improvement activities have the same protections as participants in research studies?
Cretin S, Keeler EB, Lynn J, Batalden PB, Berwick DM, Bisognano M
JAMA. 2000 Oct 11;284(14):1786; author reply 1787-8.
PMID: 11025822

Using the Baldrige management system framework in health care: the Veterans Health Administration experience.
Weeks WB, Hamby L, Stein A, Batalden PB
Jt Comm J Qual Improv. 2000 Jul;26(7):379-87.
PMID: 10897455

Using early clinical experiences to integrate quality-improvement learning into medical education.
Weeks WB, Robinson JL, Brooks WB, Batalden PB
Acad Med. 2000 Jan;75(1):81-4.
PMID: 10667882

A randomized trial of the use of patient self-assessment data to improve community practices.
Wasson JH, Stukel TA, Weiss JE, Hays RD, Jette AM, Nelson EC
Eff Clin Pract. 1999 Jan-Feb;2(1):1-10.
PMID: 10346547

Building a quality future.
Nelson EC, Batalden PB, Mohr JJ, Plume SK
Front Health Serv Manage. 1998 Fall;15(1):3-32.
PMID: 10182606

Neonatal intensive care: satisfaction measured from a parent’s perspective.
Conner JM, Nelson EC
Pediatrics. 1999 Jan;103(1 Suppl E):336-49.
PMID: 9917476

If improvement of the quality and value of health and health care is the goal, why focus on health professional development?
Batalden PB
Qual Manag Health Care. 1998 Winter;6(2):52-61.
PMID: 10178160

Collaboration in improving care for patients: how can we find out what we haven’t been able to figure out yet?
Batalden PB, Cronenwett LR, Brown LL, Moffatt C, Serrell NP
Jt Comm J Qual Improv. 1998 Oct;24(10):609-18.
PMID: 9801960

Interprofessional working and continuing medical education.
Headrick LA, Wilcock PM, Batalden PB
BMJ. 1998 Mar 7;316(7133):771-4.
PMID: 9529419

Building measurement and data collection into medical practice.
Nelson EC, Splaine ME, Batalden PB, Plume SK
Ann Intern Med. 1998 Mar 15;128(6):460-6.
PMID: 9499330

A longitudinal study of hospitalization rates for patients with chronic disease: results from the Medical Outcomes Study.
Nelson EC, McHorney CA, Manning WG Jr, Rogers WH, Zubkoff M, Greenfield S, Ware JE Jr, Tarlov AR
Health Serv Res. 1998 Feb;32(6):759-74.
PMID: 9460485

Clinical process cost analysis.
Marrin CA, Johnson LC, Beggs VL, Batalden PB
Ann Thorac Surg. 1997 Sep;64(3):690-4.
PMID: 9307458

Clinical process cost analysis: a promising tool for clinical improvement.
Johnson LC, Batalden PB, Corindia JT, Marrin CA, Nelson EC, Plume SK
Qual Manag Health Care. 1997 Spring;5(3):52-62.
PMID: 10168372

Continually improving the health and value of health care for a population of patients: the panel management process.
Batalden PB, Mohr JJ, Nelson EC, Plume SK, Baker GR, Wasson JH, Stoltz PK, Splaine ME, Wisniewski JJ
Qual Manag Health Care. 1997 Spring;5(3):41-51.
PMID: 10168371

Building knowledge of health care as a system.
Batalden PB, Mohr JJ
Qual Manag Health Care. 1997 Spring;5(3):1-12.
PMID: 10168367

A replicable and customizable approach to improve ambulatory care and research.
Wasson JH, Jette AM, Johnson DJ, Mohr JJ, Nelson EC
J Ambul Care Manage. 1997 Jan;20(1):17-27.
PMID: 10164030

The relationship between meeting patients’ information needs and their satisfaction with hospital care and general health status outcomes.
Larson CO, Nelson EC, Gustafson D, Batalden PB
Int J Qual Health Care. 1996 Oct;8(5):447-56.
PMID: 9117198

Improving health care, Part 4: Concepts for improving any clinical process.
Batalden PB, Mohr JJ, Nelson EC, Plume SK
Jt Comm J Qual Improv. 1996 Oct;22(10):651-9.
PMID: 8923165

Improving health care, Part 3: Clinical benchmarking for best patient care.
Mohr JJ, Mahoney CC, Nelson EC, Batalden PB, Plume SK
Jt Comm J Qual Improv. 1996 Sep;22(9):599-616.
PMID: 8904689

Improving health care, Part 2: A clinical improvement worksheet and users’ manual.
Nelson EC, Batalden PB, Plume SK, Mohr JJ
Jt Comm J Qual Improv. 1996 Aug;22(8):531-48.
PMID: 8877526

Using qualitative and quantitative patient satisfaction data to improve the quality of cardiac care.
Niles N, Tarbox G, Schults W, Swartz W, Wolf E, Robb J, Plume S, Nelson EC, Nugent W
Jt Comm J Qual Improv. 1996 May;22(5):323-35.
PMID: 8724687

Improving health care, Part 1: The clinical value compass.
Nelson EC, Mohr JJ, Batalden PB, Plume SK
Jt Comm J Qual Improv. 1996 Apr;22(4):243-58.
PMID: 8743061

Stakeholders and reflections on improving health professions education: what’s next?
Batalden PB
Jt Comm J Qual Improv. 1996 Mar;22(3):229-32.
PMID: 8664956

A conceptual framework for learning continual improvement in health administration education programs.
Batalden PB, Mohr J, Strosberg M, Baker GR
J Health Adm Educ. 1995 Winter;13(1):67-90.
PMID: 10140263

Comparing outcomes and charges for patients with acute myocardial infarction in three community hospitals: an approach for assessing “value”.
Nelson EC, Greenfield S, Hays RD, Larson C, Leopold B, Batalden PB
Int J Qual Health Care. 1995 Jun;7(2):95-108.
PMID: 7655815

Report cards or instrument panels: who needs what?
Nelson EC, Batalden PB, Plume SK, Mihevc NT, Swartz WG
Jt Comm J Qual Improv. 1995 Apr;21(4):155-66.
PMID: 7780530

Adolescent health and social problems. A method for detection and early management. The Dartmouth Primary Care Cooperative Information Project (COOP).
Wasson JH, Kairys SW, Nelson EC, Kalishman N, Baribeau P, Wasson E
Arch Fam Med. 1995 Jan;4(1):51-6.
PMID: 7812477

Fostering the leadership of a continually improving healthcare organization.
Batalden PB, Stoltz PK
Qual Lett Healthc Lead. 1994 Jul-Aug;6(6):9-15.
PMID: 10136754

Increasing the value of cardiac care: the Dartmouth approach.
Nugent WC, Niles NW 2nd, Schults W, Plume SK, Wolf BH, Tarbox GH, Robb JF, Nelson EC
Qual Lett Healthc Lead. 1994 Jul-Aug;6(6):53-7.
PMID: 10136747

Leading clinical quality improvement. Using patient-based information to rapidly redesign care.
Nelson EC, Wasson JH
Healthc Forum J. 1994 Jul-Aug;37(4):25-9.
PMID: 10134892

Do patients’ health status reports predict future hospital stays for patients with an acute myocardial infarction?
Nelson EC, Ferreira PL, Cleary PD, Gustafson D, Wasson JH
Fam Pract Res J. 1994 Jun;14(2):119-26.
PMID: 8053377

A short survey for assessing health and social problems of adolescents. Dartmouth Primary Care Cooperative Information Project (The COOP).
Wasson JH, Kairys SW, Nelson EC, Kalishman N, Baribeau P
J Fam Pract. 1994 May;38(5):489-94.
PMID: 8176348

Linking outcomes measurement to continual improvement: the serial “V” way of thinking about improving clinical care.
Batalden PB, Nelson EC, Roberts JS
Jt Comm J Qual Improv. 1994 Apr;20(4):167-80.
PMID: 8055073