In partnership with the International Society for Quality (ISQua), The Dartmouth Institute and the International Coproduction of Health Network (ICoHN) are developing and leading international learning tracks for further study of the coproduction of healthcare service. One track provides an “Interactive Discovery-based” series and another provides an open “Presentation-focused” education series.  These education sessions are available to international health professionals.

Project Leaders: Tina Foster, Aricca Van Citters, Gene Nelson, Julie Johnson, Paul Batalden
Partner: International Society for Quality in Health Care
Project Dates: 2020-Present
Contacts: Joy McAvoy and Rachel Forcino

The Next-Gen MS study is a three-year cluster randomized prospective study comparing usual care to feed-forward patient-reported outcomes data enabled (coproduced) care in eight MS centers in North America.  The Next Gen study will assess differences in quality of life and clinical disability outcomes in centers using the experimental intervention versus usual care controls.  The study is connected to the national MS LINK population health registry study and features direct capture electronic health record and patient-reported outcomes data capability facilitated by the OM1 data analytics group enabling a full learning health system collaborative model.

Principal Investigator: Brant Oliver
Partner: EMD Serono
Project Dates: 2021 – 2024
Contact: Fal Mehta

This evaluation will explore the perceptions of people living with cystic fibrosis (CF) (including adults with CF and parents/guardians of children with CF), and care teams regarding uptake, experiences, advantages, and disadvantages of telehealth to support delivery of high-quality clinical care. It will also evaluate the perceptions of the Cystic Fibrosis Learning Network, its strengths, and opportunities for improvement.

Team Members: Aricca Van Citters, Joel King, Madge Buus-Frank, Peter Scalia, Eugene Nelson (PI)
Partner: Cystic Fibrosis Foundation
Project Dates: 2020 – Present
Contact: Aricca Van Citters

The Promise Partnership Coproduction Learning Health System brings together the knowledge, skills, and experience of health leaders, clinicians, and researchers from Dartmouth Health and Geisel School of Medicine at Dartmouth College together with patients and families in support of Dartmouth Health strategic initiative “The Promise”—which seeks to provide the best care possible for the patients, people, and the communities it serves. Our local learning health system aims to:

• Optimize the highest quality patient outcomes and experience while sustaining a diverse workforce that finds meaning and joy in their work.
• Generate and use new knowledge through continuous innovation, quality improvement and research.

Team Members: Gene Nelson, Anna Tosteson, Kathy Kirkland, Brant Oliver, Megan Holthoff, Aricca Van Citters, Joel King, Julie Doherty, Alice Kennedy
Partner: Dartmouth Health
Project Dates: 2020 – Present
Contact: Megan Holthoff

The goal of this project is to build the capacity of healthcare stakeholders to design, develop, implement, and scale Learning Health Systems for Coproducing Effective Action. This project will create the infrastructure and resources to support a learning infrastructure, technical support, and evaluation model. It will also build stakeholder capacity to extend the approach to vulnerable populations.

Team Members: Gene Nelson (PI), Aricca Van Citters, Joel King
Partner: Robert Wood Johnson Foundation
Project Dates: 2018-2021
Contact: Aricca Van Citters

The Multiple Sclerosis Continuous Quality Improvement (MS-CQI) Collaborative is the first national multi-center quality improvement research collaborative for multiple sclerosis (MS) in the United States. The goal of MSCQI is to use patient reported and clinical information from 4 participating MS centers to study and improve outcomes and experience of care for people with MS.  MSCQI features an online platform which can be used by patients and clinicians to inform and coproduce care, population level feedback reporting to MS centers to inform improvement, and a step-wedge randomized research design to study the effect of QI interventions on outcomes over 3 years.

Principal Investigator: Brant Oliver
Partner: Biogen
Project Dates: 2018-Present
Contact: Fal Mehta

The goal of this project was to learn more about partnerships and opportunities to co-create care between individuals living with CF, their families, and their care teams. This project resulted in the co-design and pilot testing of a shared electronic environment that enabled symptom tracking, self-management, communication during and between visits, and informed decision-making to support co-creation of health and well-being.

Principal Investigator: Gene Nelson
Partner: Cystic Fibrosis Foundation; Robert Wood Johnson Foundation
Project Dates: 2014-2018
Contact: Aricca Van Citters 

Read more here: https://www.cff.org/Care/Clinician-Resources/Network-News/March-2018/CF-Health-Check-Building-Partnerships-Through-Shared-Information/

The goal of this study is to establish new methods for measuring and improving collaborative goal setting between patients and their care providers in cystic fibrosis (CF) care.

Principal Investigator: Glyn Elwyn
Partner: Cystic Fibrosis Foundation
Project Dates: 2018-Present
Contact: Gabrielle Stevens

The COVID Compass is designed as a central framework for navigating the pandemic. It could help decision-makers to effectively monitor and mitigate harms caused by COVID-19 and could be adapted for future pandemics.  The Compass will track COVID mortality rates and excess deaths alongside key trends in other important areas such as economic vitality and social hardship.  This is designed to help guide policies, actions, and behaviors that together influence lives lost and livelihoods damaged.

Project Investigator: Eugene Nelson
Co-Investigator: Brant Oliver
Team Members: Falguni Mehta, Jabeen Ahmad, Evans Amoah, Sukdith Punjasthitkul, Joel King
Project Dates: June 2020 – December 2021
Contacts: Gene Nelson

Learn more about this work: COVID Compass

This study is testing an intervention (AWARE) that combines shared decision making with structured guidance on reducing mental health medications. Youths prescribed off-label antipsychotic medications or polypharmacy (3 or more mental health medications) engage in shared decision making with their caregivers and clinicians to better understand their medications and, if appropriate, choose to reduce or stop a medication (called “deprescribing”). Clinicians then follow the structured deprescribing protocol to slowly and safely taper the medication. The AWARE study has partnered with Fora Health to support this process; caregivers and youth use a smartphone-based chatbot app to access information about mental health treatment options and monitor the intervention and their health and mental health.

Project Leaders: Glyn Elwyn, Erin Barnett, and Jennifer McLaren
Partner: Charles H. Hood Foundation and Fora Health
Project Dates:  April 2023 – March 2025
Contacts: stephanie.acquilano@dartmouth.edu

The project goal is to compare attitudes, preferences, and current access to telehealth options between clinicians and the populations they serve in both rural and urban contexts.

Project Investigator: Glyn Elwyn
Partner: Abridge
Project Dates: 2020-Present
Contacts: Rachel Forcino

The goal of this project is to implement Option Grids into clinical practice into electronic health records, patient portals, and telehealth systems at five settings – namely Brigham and Women’s Hospital, Dartmouth Hitchcock Medical Center, Mayo, Montefiore, and Washington University.

Principal Investigators: Glyn Elwyn
Partner: Patient-Center Outcomes Research Institute
Project Dates: 2018-Present
Contact: Rachel Forcino